Our free e-newsletter has a new look and a new name Research1st News. Read the March issue and visit the archives for past issues.

Maryam Aghamirzadeh has officially began her role as the Association's acting interim CEO. Read the announcement here.

Kim McCleary, who has led the Association's programs since 1991 transitions to an advisory role this month. Read about our announcement and plans for finding the Association's next CEO.

Our spring webinar series wrapped up, but we've archived links to all the topics, resources and 5 of 6 recordings here on Research1st.

FDA has launched a new Patient Network website, with links to resources and ways to get involved with drug development. Read a summary at Research1st.

Visit our blog, Research1st, for current, credible information about the latest research. 260+ posts so far, with new info added throughout the month.

The Association and Biovista announce successful completion of drug repositioning project.

The FDA selected ME/CFS as the first of 20 disease-specific conditions for its Patient-Focused Drug Development Initiative. It hosted a 2-day workshop to highlight patient experiences and ways to overcome challenges to expand treatment options. Read our report here.

We are conducting a patient-focused survey to document the range of patient experiences with symptoms, life impact and treatment. Read the top-line results of the first 1,400 responses shared by participants.