Laura Hillenbrand
Honored
The fight against chronic fatigue
syndrome (CFS) hit the silver screen on July 28, when hundreds of celebrities,
politicians, scientists, Association benefactors and people with the illness
attended a special Washington, DC showing of Seabiscuit, a major motion picture starring Tobey McGuire, Jeff Bridges
and Chris Cooper.
The event, organized by The CFIDS
Association of America, featured a rare public appearance by Laura Hillenbrand,
award-winning author of Seabiscuit: An American Legend, the book on which the movie is based. Ms.
Hillenbrand wrote her highly-acclaimed book while suffering from CFS.
Her success, and her willingness to
speak out about her 16-year battle with the illness, has helped the cause
immensely.
“It’s an inspiring story,” CFS
lobbyist Tom Sheridan told the crowd. “The jockey is inspiring. The horse is
inspiring. But really the most inspiring story is the author.”
Chaired by Tony Kornheiser, star of
ESPN’s “Pardon the Interruption” show and ESPN Radio’s “The Tony Kornheiser
Show,” the screening -- as well as a special tea held in Ms. Hillenbrand’s honor
the day before -- raised more than $38,000 for the Association.
Other special guests attending the
benefit were Bob Costas, Diane Rehm, Andrew Beyer, Arch Campbell, Michael
Wilbon, Dr. Julie Gerberding, Dr. William Reeves, U.S. Senator Harry Reid and
Kim Kenney, Association President & CEO.
But the star of the night was Laura
Hillenbrand.
A grateful crowd erupted with
applause when Ms. Hillenbrand entered the room. Laura Hillenbrand said she was
deeply moved by the gathering. “Thank you so much. To Kim Kenney, to The CFIDS
Association, and to everyone who is working to find a cure for CFS.”
800,000 U.S. adults and countless
children suffer from CFS, a serious and complex illness characterized by
incapacitating fatigue, memory and concentration problems, severe pain and body
weakness and persistent flu-like symptoms. Despite over a decade of research,
the cause of the illness is not yet known, there is no definitive diagnostic
test and treatment is aimed primarily at symptom relief.
The CFIDS Association of America is
the nation’s leading non-profit organization committed to conquering CFS. Since
1987, the Association has invested $14 million in education, public policy and
research in its efforts to bring an end to the suffering caused by
CFS.
CFS is also known as chronic fatigue and
immune dysfunction syndrome (CFIDS).
You can make a difference in the lives
of those living with CFS by supporting The CFIDS Association of America. Make a
tax-deductible donation today. Join us
on Capitol Hill September 17 and 18. And
stay up-to-date year round with our free
e-newsletter.
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