The CFIDS Association of America is governed by an elected Board of Directors comprised of dedicated men and women who volunteer their time, knowledge and breadth of experience to advance the Association's mission to make ME/CFS understood, diagnosable and treatable. Since the Association was founded in 1987, 91 people have enriched the organization through their service on the Board.
Association policy is set by the Board, which includes people with ME/CFS, family members of people with ME/CFS, and professionals, all of whom understand the needs of ME/CFS patients and are in regular and frequent contact with people served by this organization. Members of the Board and professional staff also rely on the counsel of members of various advisory committees, standing committees and task forces when making policy decisions. In 2011 the Association formed a Scientific Advisory Board to help guide and shape the Association's research program.
The President&CEO leads the Association’s staff in implementing Board policy and carrying out strategic and operating plans adopted by the Board. The President&CEO is responsible to and reports to the Board.