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Patient Advocacy
Whatever your questions about CFIDS are --
- What do I do now that I can't work?
- Why can't I find a doctor who knows about CFIDS?
- What research is being done to cure CFIDS?
- What are the long-term effects of CFIDS?
-- the
federal government can play a
role in finding solutions to these and many other questions. Securing a more
dedicated and effective federal government response to CFIDS is a key challenge,
and an area in which the CFIDS Association of America excels.
The CFIDS Association leads the nation in
the depth and breadth of advocacy activities conducted on behalf of persons
with CFIDS (PWCs). Since 1992, the Association has worked closely with
professional lobbyists from The Sheridan Group to build an effective public
policy program that focuses on the most pressing issues facing persons with
CFIDS.
Follow the links below to learn more about
the Association's public policy work and ways you can add your voice to the call
for increased research and more accessible social services for persons with
CFIDS.
-
Congressional Activities -
legislation, key members of Congress, CFIDS Lobby Day
-
Federal Agency Activities -
government-sponsored CFIDS activities in the federal health, education,
military, and justice agencies
- Chronic Fatigue
Syndrome Advisory Committee (CFSAC) - Department of Health and
Human Services committee which brings together federal agencies, activists,
doctors, researchers, and the general public
-
Grassroots - Getting people who care
about CFIDS involved in advocacy is crucial to getting more attention and
funding from the government. Our Grassroots Action Center makes
participation easy! Click here for more information
about
what you can do to help!
-
Advocacy Archives -
historical information about past
Congressional testimony, letters, and legislation; advocacy alerts; and
other public policy efforts
- The
Sheridan Group - The Association has been
represented by The Sheridan Group since 1992. Learn more here.
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