Advocacy Alert: 09/13/2004

The Department of Health and Human Services CFS Advisory Committee will meet next on September 27,2004 in Washington, D.C. Reprinted below is the meeting announcement from today’s Federal Register.Please note that pre-registration is required for public comment by Friday, September 17, 2004. Any individual who wishes to participate in the public comment session should call the executive secretary’s office at 202-690-7694.
K. Kimberly McCleary, the Association’s President & CEO, will address the committee during the morning session.

[Federal Register: September 13, 2004 (Volume 69, Number 176)]
[Notices]              
[Page 55162-55163]
From the Federal Register Online via GPO Access [wais.access.gpo.gov]
[DOCID:fr13se04-47]    

DEPARTMENT OF HEALTH AND HUMAN SERVICES
Chronic Fatigue Syndrome Advisory Committee

AGENCY: Office of the Secretary, HHS.
[[Page 55163]]

ACTION: Notice of meeting.

SUMMARY: As stipulated by the Federal Advisory Committee Act, theU.S.
Department of Health and Human Services is hereby giving notice that
the Chronic Fatigue Syndrome Advisory Committee (CFSAC) will hold a
meeting. The meeting will be open to the public.

DATES: The meeting will be held on Monday, September 27, 2004, from 9 a.m. to 5 p.m.

ADDRESSES: Department of Health and Human Services,Hubert H. Humphrey
Building, 200 Independence Avenue , SW., Room 705A, Washington , DC20201.

FOR FURTHER INFORMATION, CONTACT: Dr. Larry E. Fields, Executive Secretary,

Chronic Fatigue Syndrome Advisory Committee, U.S. Department of Health and Human Services, Hubert H. Humphrey Building, 200 Independence Avenue, SW., Room 719H, Washington, DC 20201 ; (202) 690-7694.

SUPPLEMENTARY INFORMATION: CFSAC was established on September 5, 2002, to replace the Chronic Fatigue Syndrome Coordinating Committee. CFSAC was established to advise, consult with, and make recommendations to the Secretary, through the Assistant Secretary for Health, on a broad range of topics including (1) the current state of knowledge and research about the epidemiology and risk factors relating to chronic fatigue syndrome, and identifying potential opportunities in these areas; (2) current and proposed diagnosis and treatment methods for chronic fatigue syndrome; and (3) development and implementation of programs to inform the public, health care professionals, and the biomedical, academic, and research communities about chronic fatigue syndrome advances.

The tentative agenda for this meeting is as follows:                

9 a.m. Chairperson
Call to Order
Request for Roll Call
Introductions and Opening Remarks
Approval of the Minutes of June 21st, 2004
Discussion

9:20 a.m. Executive Secretary
Roll Call
Summary of Public Comments
Operational
Matters
Discussion

9:30 a.m. Invited Organizational Updates
K. Kimberly McCleary
CFIDS Association of America
Research Funding
Discussion

Jill McLaughlin
National CFIDS Foundation, Inc.
Patient Issues
Discussion

10:30 a.m. Break

10:45 a.m. Ex Officio Members
Requested follow-ups
Other
Updates
Discussion

11:30 a.m. Public Comment

12 noon Lunch Break

1 p.m. Subcommittee Updates
Disabilities: Lyle Lieberman, Chair
Education: Dr. Roberto Patarca, Chair
Research: Dr. Nahid Mohagheghpour, Chair

2:24 p.m. Break

3:15 p.m. Planning: Future Directions
Recommendations
Invited
Organizational Updates
Other Matters
Discussion

4 p.m. Public Comment

4:30 p.m. Summary
Action Steps
Timelines

5 p.m. Adjournmet

Public attendance at the meeting is limited to space available. Individuals must provide a photo ID for entry into the meeting.

Individuals who plan to attend and need special assistance, such as sign language interpretation or other reasonable accommodations, should notify the designated contact person. Members of the public will have the opportunity to provide comments at the meeting. Pre-registration is required for public comment by September 17, 2004. Any individual who wishes to participate in the public comment session should call the telephone number listed in the contact information to register.

Public comment will be limited to five minutes per speaker. Any members of the public who wish to have printed material distributed to CFSAC members should submit materials to the Executive Secretary, CFSAC, whose contact information is listed above prior to close of business September 17, 2004.

Dated: September 8, 2004.
Dr. Larry E. Fields,
Executive Secretary, Chronic Fatigue Syndrome Advisory Committee.
[FR Doc. 04-20635 Filed 9-9-04;10:03 am]
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