STEEP DECLINE IN NIH FUNDING FOR CFS RESEARCH!
Advocacy Alert: 09/27/2004
The steep decline in NIH
funding for CFS research was the topic of a presentation and report delivered to
the Department of Health and Human Services CFS Advisory
Committee today by Association president
and CEO Kim McCleary. Ms. McCleary conducted a detailed analysis of funding
information provided by the National Institutes of Health (NIH) budget office
for CFS research from FY 1999-2003.
Although the total CFS research funding reported
by NIH for
the five-year period was $31.6 million, Ms. McCleary presented research
indicating that this total vastly overstated NIH support for CFS research, due
to the budget office’s inclusion of 12 projects that had no relevance to CFS and
9 additional projects that were for similar, but diagnostically distinct,
illnesses. After adjusting for these misclassified research projects, NIH’s
support for CFS research dropped to $25.8 million for the past five years and
less than $4 million for FY2003, the most recent year for which totals were
provided. The FY2003 figure is little more than the amount spent on CFS research
by NIH in 1992. Over this same time period, the overall NIH budget increased a
The CFIDS Association’s report
calls for NIH to, “take immediate steps to reverse the shocking decline
in CFS research and to build a robust program commensurate with the magnitude of
the illness.” Specific recommendations, including the release of a well-funded
Request for Applications and creation of clinical and research “Centers for
Excellence”, are included in the 45-page report, as is detailed documentation to
support the analysis. Ms. McCleary will meet with key Congressional staff
tomorrow to share the report and discuss the Association’s recommendations.
Please respond to our Alert! and ask Dr. Elias Zerhouni to
take action to reverse this alarming decline in research. Just click on the
Capital Building icon at
http://www.cfids.org/ and follow the
step-by-step instructions from there. Also, use the "Tell A Friend"
feature to generate even more support for these requests.
For a copy of the report in its entirety, send an e-mail
message to NIHreport@cfids.org. A summary of the findings will be available on
the "What's New"
section of the Association’s website later this