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Advocacy Alert: 3/8/2007
CFS continues to inspire headlines in all kinds of media outlets in the U.S. and around the world. Here are just 3 of the most recent stories in the news (including one from today), literally hundreds of which are compiled on our website at http://www.cfids.org/sparkcfs/media-coverage.asp.
READ: In “A debilitating condition, an uphill battle,” Carol Ann Campbell profiled the journeys of local CFS patients 13-year-old Brian Bernard and support group leader Jackie Niederle. The article also covers research directions, the national public awareness campaign, and the upcoming March 10 CFS seminar at Robert Wood Johnson University Hospital, jointly sponsored by the CFIDS Association and the NJ CFS Association. Both Brian and Jackie appear in the traveling photo exhibit that will be at the conference and also at Menlo Park Mall in Edison, NJ from March 15-18. NJ Star-Ledger (3/08/07)
LISTEN: CFS patient Julie Levy and Association board member Katrina Berne are interviewed on The Story with Dick Gordon on WUNC-FM, North Carolina Public Radio. The interview aired March 1; accompanying materials online include an essay written by Levy about coping with CFS and links to the Association’s and the CDC’s web sites.
http://thestory.org/archive/ (scroll down the page to find the story for March 1)
WATCH: KTVN Channel 2 in Reno, Nevada covers the March 5 groundbreaking for the new 100,000-square-foot, $78-million Center for Molecular Medicine at the University of Nevada. The new research facility will be home to the National Cancer Institute and the Whittemore Peterson Institute for Neuro-immune Disease, the first American institute of its kind to look for the cause and cure of CFS and other neuroimmune diseases. (3/05/07)
Look for the TV and Radio PSAs on CFS
The television and radio public service announcements (PSAs) are now airing frequently across the country. You can help us by letting us know your reaction—or reactions of your friends or family—to seeing or hearing a PSA on chronic fatigue syndrome. See http://www.cfids.org/cfidslink/2007/030706.asp