Advocacy Alert: 4/20/2009
Upcoming CDC meeting; you can now participate by conference call
Express your views about CDC's CFS Research
Comments solicited before April 22
The U.S. Centers for Disease Control and Prevention (CDC) will host a public meeting to gather input on its chronic fatigue syndrome (CFS) research program as it develops a 5-year plan. The draft plan will not be made publicly available before this meeting, but CDC is soliciting input on the following 5 categories of research topics:
- Studies of Defined Populations
- Provider-based Patient Registries
- In-hospital Clinical Studies
- Laboratory Studies
- Provider and Public Educational Intervention Research
The complete meeting notice can be viewed at http://cdc.gov/cfs/meetings/2009_04.htm. A conference line will be available for persons wishing to participate via telephone. Participants will be able to listen to the full proceedings, and time will be devoted to receiving comments from telephone callers. Persons wishing to comment via telephone should send written notification by April 22, 2009, including name, organization (if applicable), address, phone, fax, and email addresses to the contact below. Additional details and call-in information will be available on this website prior to the meeting.
Learn more about the CDC's CFS research program at its website, http://cdc.gov/cfs/cfsresearch.htm. No one from the program leadership was present at the 9th international research CFS conference held last month in Reno. Read more about CDC's program based on presentations and testimony given at the most recent federal CFS Advisory Committee meeting: http://www.cfids.org/cfidslink/2008/110704.asp.
Use this simple form to send your comments to CDC. We have intentionally left the main comment area blank so that responses are individualized.