Advocacy Updates

Advocacy Alert: 8/11/2009

Advocacy News Section from August CFIDSLink

Advocacy Counts

This month, members of Congress will be back in home districts/states and many will hold "town meetings" or "listening sessions" for constituents. Take advantage of local opportunities to get CFS on the record.

The bill that funds medical research is the largest non-defense spending bill considered by Congress. Click here to read language about CFS programs just passed by the Senate.

The CFIDS Association has joined the Alliance for Taxpayer Access as part of its effort to "free the data" on CFS that has been created by CDC and other agencies using public funds. Ask your U.S. Senators to support the Federal Research Public Access Act.

Two more notes:
This month we invite readers to help us fine-tune our content based on your life circumstances, experiences and opinions. Please complete the 25-item survey at https://www.surveymonkey.com/s.aspx?sm=pvjQeneeargHHDiKsXojjQ_3d_3d. Only one response per computer; the survey will close on August 31. Responses are completely anonymous.

Read the entire August edition of CFIDSLink, our monthly e-newsletter. Sign up to receive the Link in your e-mail inbox free-of-charge.