| Advocacy Archives
Since The CFIDS Association
of America began leading national public policy efforts in 1992, there has
amassed a huge collection of advocacy-related documents, ranging from
Alerts! sent to advocates by the Association, to CFIDS-related
Congressional language included with annual spending bills. We have
established this archive to make some of the more recent documents available to
advocates and others interested in reading the original text. Visit this part of
the site often to stay abreast of new correspondence and documentation arising
from the Association's advocacy efforts.
GAC Alerts: CFIDS Activist members periodically receive notices of timely
opportunities to express support for CFIDS-related action by
policy-makers.
Lobby Day Reports: For 14 years
the Association has hosted a CFIDS Lobby Day. Here you can read a report on the most recent
event, or find information about participating in the
next one, usually held in spring.
Appropriations: Each year the
Association attempts to influence the amount of and related priorities for
federal funding dedicated to CFIDS research. This section houses the actual
language from the spending bills that direct federal CFS research funding.
Letters from Congress in Support of
CFS: The Association seeks help from Members of Congress to strengthen
federal research and education activities. View recent letters from Congress
here.
Congressional Testimony
: Congress periodically provides opportunities to receive oral
and written public testimony, although such opportunities have been more rare
since 9-11. The Association has been fortunate to participate
in these kinds of hearings over the
years. Here you can find past testimony presented to Congressional committees
that make funding and policy decisions important to CFIDS-related initiatives. Also archived here are
statements made by members of Congress about CFIDS as part
of the official record.
Name Change
Documents: For more than a decade, persons with CFIDS have worked to change
the name "chronic fatigue syndrome" to a name that more accurately describes the
illness. This section archives some of the Association's materials about the
name change.
Reports
on Federal
Agency Programs: The Association takes seriously its watchdog role. It regularly
requests detailed reports on federal CFS programs and thoroughly analyzes those
reports for accuracy and completeness. The section includes recent report
summaries on the CDC and the
NIH with regard to funding and other
issues.
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