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Advocacy Archives: Advocacy
Alert
ILC
study seeks input from CFIDS
patients
Advocacy Alert: 5/2/2002
The Research and Training
Center on Full Participation in Independent Living (RTCFPIL), was awarded a
grant by the National Institute on Disability and Rehabilitation Research
(NIDRR) to determine how well people with disabilities are able to live
independently and participate in their
communities.
The survey tool they will be using includes input from a workgroup of
nationwide disability advocates and addresses a variety of issues, including
employment, transportation, housing, education, health care and recreation.
Using the Consumer Concerns Report Method, they are conducting the survey to
learn directly from persons with disabilities about participation in their
communities. This information will be used to craft a research agenda that is
based on feedback from the disability community. Their goal is to solicit as
many responses to their survey from people with disabilities and chronic health
conditions across the nation as possible.
You can access the survey by visiting
www.rtcfpil.org/survey.htm
For additional information, or to obtain a paper copy of the survey, call
800-255-3555 and ask about the R-One survey. The results of this survey will be
posted on their Web site,
www.rtcfpil.org/surveyresults.htm
in the fall of 2002.
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