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Patient Advocacy

Whatever your questions about CFIDS are --

  • What do I do now that I can't work?
  • Why can't I find a doctor who knows about CFIDS?
  • What research is being done to cure CFIDS?
  • What are the long-term effects of CFIDS?

-- the federal government can play a role in finding solutions to these and many other questions. Securing a more dedicated and effective federal government response to CFIDS is a key challenge, and an area in which the CFIDS Association of America excels.

The CFIDS Association leads the nation in the depth and breadth of advocacy activities conducted on behalf of persons with CFIDS (PWCs). Since 1992, the Association has worked closely with professional lobbyists from The Sheridan Group to build an effective public policy program that focuses on the most pressing issues facing persons with CFIDS.

Follow the links below to learn more about the Association's public policy work and ways you can add your voice to the call for increased research and more accessible social services for persons with CFIDS.

  • Congressional Activities - legislation, key members of Congress, CFIDS Lobby Day
  • Federal Agency Activities - government-sponsored CFIDS activities in the federal health, education, military, and justice agencies
  • Chronic Fatigue Syndrome Advisory Committee (CFSAC) - Department of Health and Human Services committee which brings together federal agencies, activists, doctors, researchers, and the general public
  • Grassroots - Getting people who care about CFIDS involved in advocacy is crucial to getting more attention and funding from the government. Our Grassroots Action Center makes participation easy! Click here for more information about what you can do to help!  
  • Advocacy Archives  - historical information about past Congressional testimony, letters, and legislation; advocacy alerts; and other public policy efforts
  • The Sheridan Group - The Association has been represented by The Sheridan Group since 1992. Learn more here.