January - February
Thank you to departing Directors
members of the Board
of Directors of The CFIDS Association of America have elected to retire from the board this year. Their
departures come as the result of various personal, family and professional obligations and choices.
The departing directors are: Coco Crum, Heather Frese, F. Kenneth Iverson, Allison O'Neal
Each of these directors has made important contributions to the Association, and we
will miss their
service on the Board of Directors. However, we look forward to their continued dedication to the Association's
Please join the Board and staff of the Association in thanking them for their service
and wishing them
well as they focus on the personal and professional challenges ahead.
Strong response to Wall Street Journal
On Dec. 23, the Wall Street Journal
an editorial that was highly disdainful of CFIDS. The national financial newspaper was critical of an
anticipated ruling from the Social Security Administration regarding CFIDS. The newspaper decried the
"now rampant diagnosis of CFS" and dismissed CFIDS advocates as extremists "portraying themselves as victims
of apathy, official deceit or some other government or corporate plot."
We responded, both with a letter from the Association and with a C-ACT Alert. Many of
you joined in
the response. We have received copies of dozens of letters you have sent to the Wall Street Journal,
and we appreciate the constructive and reasoned approach of your letters.
800 phone service
In order to improve our
responsiveness to your telephone calls, we are streamlining the options on our
800 telephone line. That line will now be used for requesting general
information from the Association. Members who have questions about their
membership or other specific concerns should call the Resource Line at
704/365-2343, where they will get prompt and personal assistance from the
Association staff rather than having to leave a message on an automated voice
mail system. The Resource Line is staffed from 9 a.m. to 6 p.m. Eastern Time on
Monday through Thursday, and from 9 a.m. to 1 p.m. on