Thanks to those who have worked with the media to increase awareness of CFIDS. This
update shows the
success we’re having, and responses by the CFIDS Public Relations (CPR) Team Please clip articles
about CFIDS, note the name and date of the publication, and send to CPR Team, PO Box 220398, Charlotte
NC 28222-0398. Send a note to that address or E-mail to firstname.lastname@example.org
to join the team.
September 1998, ADVANCE for Nurse Practitioners. "CFS:
New research zeros
in on physiologic causes," by Sally Peters. Focuses on the experiences of nurse practitioner Cynthia Voyles,
who works with Dr. Charles Lapp in Charlotte, N.C. Voyles advises nurses to be sympathetic to their CFIDS
patients' emotional pain, as well as physical pain. Recent research is highlighted, with the patient perspective
from Patti Schmidt.
Nov. 15, 1998, Chicago Tribune Magazine. "He's really sick of being
tired," by photographer Charles Osgood and his 14-year-old son, Zac, who has CFIDS. They tell the story
of CFIDS from a parent's and a child's perspective in powerful terms, covering doctor, school and government
issues. Highlights Dr. David Lipkin and Randi Ravitts Woodworth, president of the Chicago CFS Association.
1998, U.S. Pharmacist. "The many faces of fatigue." Clearly differentiates CFIDS from the fatigue
that occurs as a symptom of many other diseases, and offers practical and appropriate suggestions to help
pharmacists counsel patients who seek their advice.
Oct. 19, 1998, Boston Globe. "New study finds many are
hit by chronic
fatigue," by Richard A. Knox. Reporting on the AACFS conference, article includes new prevalence data,
progress in research and the name controversy. Kim Kenney and Drs. Philip Lee, Anthony Komaroff and Nancy
Klimas are quoted. An editorial supporting research efforts ran the same day.
Oct. 26, 1998, The
Charlotte Observer, N.C. "Chronic fatigue patients want a new name," by Karen Garloch. Describes
the arguments for changing the name and the obstacles to be overcome.
Nov. 8, 1998, New York
Times. "Still battling an illness, Jarrett ends his silence." Sympathetic article describes jazz
pianist Keith Jarrett's battle with CFIDS (see CFIDS News this issue).
8, 1998, Vernon Daily Record, Texas. "More than tired: Chronic fatigue syndrome sufferers say
illness hard to explain to others." Article describes CFIDS through the experiences of local residents
Donna Pate and Amanda Cook.
Nov. 15, 1998, syndicated (Sun-Sentinal, Florida; The
Columbian, Washington; etc.) Dr. Paul Donohue affirmed his recognition of CFIDS as a real, serious
illness in his syndicated health column.
Dec. 9, 1998, The Minnesota Women's Press. "A
spirit that never tires." Profile of Marjory Aldrich, her difficult experience with CFIDS and her advocacy
for victims of mistreatment by doctors, lawyers and state agencies.
Dec. 23, 1998, Wall Street Journal, "Chronic Disability payments." Editorial disdainful of CFIDS
opposes forthcoming Social Security ruling (see Association News this issue).
On the airwaves
Sept. 27, 1998, Channel 7 News, Miami, Fla. "Healthcast" presented
view of CFIDS, including comments from patient Susan DePasquale and doctors Paul Goodnick and Nancy Klimas.