March - April
The CFIDS Chronicle
1999 Chronicle Reader Survey
Your input is vital as we evaluate the role of the Chronicle in achieving the
Association's mission and set priorities for the year ahead.
A Look at Fibromyalgia
Russell Rothenberg, MD, a fibromyalgia specialist, assesses the current
understanding of this CFIDS cousin in terms of research and patient care.
Research News: NADH Study Reports Long-term
Results of a study at Georgetown University on NADH, a
nutritional supplement, made a big splash in the media. Also, more research
Many Uses for Neurontin
This anti-convulsant drug has been studied in
epileptic seizures, neuropathic pain and anxiety disorders but not in CFIDS.
Could it be a useful treatment?
By David Hoh
CFIDS in Developing
A PWC who
became sick while working in Ethiopia speculates about the presence of CFIDS
in Third World countries and what such information would mean.
By James Rotholz, PhD
A tribute to
CFIDS caregivers, in the words of PWCs.
Marc Iverson and Wilhelmina Jenkins, chairman and
vice-chairman of the Association, address changes that are taking place in the
Conferences in Philadelphia and
Australia recently added to the discussion about CFIDS in both medical and
CFIDS Advocacy and Association News
The Association staff has had
gotten 1999 off to a flying start, holding numerous policy meetings with
government officials in Washington, D.C.
By Vicki Walker
Lobby Days are
It's time to prepare for May 12, CFIDS Awareness Day,
and the Association's annual lobbying campaign on Capitol Hill.
By Kris Hopkins
Living with CFIDS
Living Within My Envelope
A how-to story of one PWC's
journey toward understanding her illness, learning from her experiences and
accepting new limits on her life.
By JoWynn Johns
One to One
Tips, ideas and inspiration from
one PWC to another.
Art, Science and a Red Rubber
Have doctors gotten so caught up in the technology of
modern medicine that they're ignoring the art of treating patients?
By Lilli Jolgren Day
MCS: Which Do You Have?
A serious look at the diagnosis-and
misdiagnosis-of these two confusing conditions, through the experiences of a
patient diagnosed with both.
By Nan Talbot
Two small books focus on herbs and other natural remedies.
From the editor:
the years, The CFIDS
Chronicle has been the primary medium through which the Association has pursued its education and support
goals, and the publication has played a vital role on the advocacy and research fronts, as well. Weíre
re-evaluating the role of the Chronicle this year to be sure it will continue to further the mission of
the Association and serve the needs of the CFIDS community. This process is part of the ongoing, long-range
strategic planning led by the Associationís Board of Directors, which you can read more about in "Founderís
Forum." In this issue, we ask for your input into the process. As you respond to the Reader Survey, please
feel free to add additional comments. They will be valuable as we set priorities, plan articles and contemplate
This issue also features a tribute to caregivers, thanks to your heartfelt response
to our request for comments and photos. In "D.C. Dispatch," youíll see that the Associationís advocacy
program has gotten off to a flying start in 1999, building toward the annual Lobby Day in May.
David M. Hoh, Editor