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In this issue
March - April 1999
The CFIDS Chronicle


Features

    1999 Chronicle Reader Survey
    Your input is vital as we evaluate the role of the Chronicle in achieving the Association's mission and set priorities for the year ahead.

    A Look at Fibromyalgia Syndrome
    Rheumatologist Russell Rothenberg, MD, a fibromyalgia specialist, assesses the current understanding of this CFIDS cousin in terms of research and patient care.

    Research News: NADH Study Reports Long-term Gains
    Results of a study at Georgetown University on NADH, a nutritional supplement, made a big splash in the media. Also, more research news.

    Researchers Explore Many Uses for Neurontin
    This anti-convulsant drug has been studied in epileptic seizures, neuropathic pain and anxiety disorders but not in CFIDS. Could it be a useful treatment?
    By David Hoh

    CFIDS in Developing Countries
    A PWC who became sick while working in Ethiopia speculates about the presence of CFIDS in Third World countries and what such information would mean.
    By James Rotholz, PhD

    Thank You for Caring
    A tribute to CFIDS caregivers, in the words of PWCs.



Departments

    Founder's Forum
    Marc Iverson and Wilhelmina Jenkins, chairman and vice-chairman of the Association, address changes that are taking place in the organization.

    Readers' Forum

    Media Watch

    CFIDS News
    Conferences in Philadelphia and Australia recently added to the discussion about CFIDS in both medical and patient circles.

    CFIDS Advocacy and Association News

    D.C. Dispatch
    The Association staff has had gotten 1999 off to a flying start, holding numerous policy meetings with government officials in Washington, D.C.
    By Vicki Walker

    Lobby Days are Here Again!
    It's time to prepare for May 12, CFIDS Awareness Day, and the Association's annual lobbying campaign on Capitol Hill.
    By Kris Hopkins

    Association News

    Living with CFIDS

    Living Within My Envelope
    A how-to story of one PWC's journey toward understanding her illness, learning from her experiences and accepting new limits on her life.
    By JoWynn Johns

    One to One
    Tips, ideas and inspiration from one PWC to another.

    Commentary

    Art, Science and a Red Rubber Nose
    Have doctors gotten so caught up in the technology of modern medicine that they're ignoring the art of treating patients?
    By Lilli Jolgren Day

    CFIDS or MCS: Which Do You Have?
    A serious look at the diagnosis-and misdiagnosis-of these two confusing conditions, through the experiences of a patient diagnosed with both.
    By Nan Talbot

    Book Reviews
    Two small books focus on herbs and other natural remedies.



From the editor:

Over the years, The CFIDS Chronicle has been the primary medium through which the Association has pursued its education and support goals, and the publication has played a vital role on the advocacy and research fronts, as well. We’re re-evaluating the role of the Chronicle this year to be sure it will continue to further the mission of the Association and serve the needs of the CFIDS community. This process is part of the ongoing, long-range strategic planning led by the Association’s Board of Directors, which you can read more about in "Founder’s Forum." In this issue, we ask for your input into the process. As you respond to the Reader Survey, please feel free to add additional comments. They will be valuable as we set priorities, plan articles and contemplate changes.
 
This issue also features a tribute to caregivers, thanks to your heartfelt response to our request for comments and photos. In "D.C. Dispatch," you’ll see that the Association’s advocacy program has gotten off to a flying start in 1999, building toward the annual Lobby Day in May.

David M. Hoh, Editor