May - June
One to One
sharing of tips, strategies,
ideas and helpful thoughts from one person with CFIDS to another
One of the symptoms that I never experienced
until CFIDS is canker
sores and sore spots on my tongue. A doctor recommended that I put a drop or two of licorice extract on
the sore area. I have found this to greatly reduce the severity and duration of my sores.
thing that was helpful for me was to stay on a strict schedule: going to bed and getting up at the same
time every day.
Brush Prairie, Wash.
I felt so ill, I forced myself
out of bed each morning. When
a friend who suffers from thyroid disease heard my symptoms, she shared the diet her doctor had recently
put her on. Barry Sear's Zone Diet has changed my life! All it requires is eating a palm-sized piece of
low-fat chicken, turkey, fish, lean beef, pork or an equivalent, such as 12 ounces of tofu. Then balancing
that protein with an equal amount of fruit and vegetables. A small amount of olive oil, slivered almonds
or olives rounds out a meal. The aim is to keep insulin levels balanced. We eat little bread (just half
a mini pita occasionally) and little pasta, but I don't miss them.
Last summer, I swam in our pool
for 15 minutes at a time or took 15-minute walks with my husband. Admittedly, following the diet precisely
means lots of measuring and chopping. Luckily, my husband helps. After all, he was doing all the cooking
plus housework and laundry before.
My energy levels have rebounded enough that I work part time
now (I worked full time before CFIDS). An added bonus is that I lost 15 pounds and can once again wear
clothes I haven't fit into in more than two years.
Sandy McPherson Carrubba
Until about a year and a half ago,
sexual intercourse posed a
big problem for me in my marriage. I would be physically exhausted and in bed for two to four days afterward.
After I discovered CoQ-10 and started taking 30 mg daily, I noticed a slight increase in overall energy,
but the most important change was that physical intimacy was possible without the extreme exhaustion.
This has been an enormous help in my marriage.
A few years ago, I was diagnosed
with CFIDS, almost bedridden
and in a state of complete exhaustion. I read an article talking about magnesium and CFIDS, so I tried
it-1,000 mg magnesium, 200 mg calcium and 200 mg potassium. In about 10 days it made a big difference
for the better. I can function at about 75% of my normal self, and it's a world better than the complete
exhaustion stage. I don't know if this concoction would work for anyone else, but it is such a low-cost
and painless experiment, it sure couldn't hurt.
I developed CFIDS about 13 years
ago, though it wasn't diagnosed
until about eight years ago. Throughout that time, I have had a "broken thermostat"-my temperature ranges
from 94 to 102 often in the course of a single day-plus a non-existent shiver reflex and, frequently,
an inability to tell when I was cold.
Recently in connection with another matter altogether, my
new psychiatrist put me on Wellbutrin and Celexa in tandem. He was as stunned as I was when my thermostat
promptly resumed functioning. My shiver reflex is back and my temperature is behaving itself. On top of
that, I am getting up several hours earlier than I have been able to in the last eight years. I am definitely
not well, but even having some things back, or almost back, to normal is heavenly.
Salt Lake City, Utah
My tip for energy is B-12 shots
twice a month. Also:
Julia A. Burris
- Get housework done and shop for groceries early in the
- Rest every day after lunch for one to one-and-a-half
- Take carpet off the floors. It causes allergies.
- Don't use cologne or fragrances of any kind.
- Go to church every Sunday and pray daily.
The success of this section
depends on you. If you have a
coping tip, a favorite quotation or a self-care treatment that has helped you, share it with others. Mark
notes "One to One" and please include an E-mail address or a phone number.