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In this
Issue
July/August
1999
The CFIDS Chronicle
Features
1999 Reader Survey:
The Results
Your responses reveal some potentially helpful experience with treatments,
both as recommendations and as cautions. The survey results also suggest topics to explore in future issues.
Study of Teens with
CFIDS Raises Research Questions
In an interview, psychologist Dr. Bryan Carter of Kentucky
talks about his studies of teen-agers with CFIDS, mistreatment of CFIDS
patients by the medical community, effective counseling and future research.
The issues raised are not limited to teen-agers.By Rebecca Moore
Research News
Summaries of published papers on
drug-gender interaction, inflammatory bowel disease, hypoglycemia, Chiari I
malformation, cognitive behavior therapy and more.
Study Compares
Reactions to Three Names for CFS
Medical students and
residents respond differently to the same patient when only the name of the
illness is changed.
Departments
Founder's Forum
A letter from CFIDS
Association Founder Marc Iverson.
Readers'
Forum
Letters address Lobby Day participation, candida,
Neurontin, Cher and other reader concerns.
Media
Watch
CFIDS
News
A community advisory board is planned to monitor Ampligen
trials, a New Zealand doctor tours the U.S., and a CFIDS banner waves in
Washington, D.C.
CFIDS
Advocacy and Association News
D.C.
Dispatch
The revelations about the Centers for Disease Control lead
to a General Accounting Office audit of CFIDS research spending. The CFIDS
Association is working to get restitution of the misspent funds.
By Vicki Walker
Association
News
Education initiatives and the 1998 Annual Report.
Support Groups
Build
Awareness
Lobby Day participants are supported by many local efforts
to make CFIDS Awareness Day a success.
By Kris Hopkins
Living With CFIDS
Taijiquan for CFIDS
The Chinese art of focused and graceful movement brings balance to
a life thrown out of balance by CFIDS.
By Hanna Fingeret
Odd
Phrases #2: More Guideposts
Sometimes a simple phrase can hold deep meaning and guide
one through difficult times. This follow-up article presents phrases sent in
by readers.
By Susan Dion
Preparing for College and
Independence
A college student shares tips for ensuring a successful
college experience with CFIDS.
By Rebecca Moore
A Letter to
Friends
Sidelined from work, a patient uses humor to maintain
positive relationships with co-workers and friends.
By Jay
Antenen
One to
One
Tips, ideas and inspiration from one PWC to another.
Commentary and Reviews
A New Mental
Illness?
Doctors who leap to the conclusion that CFIDS is all in
the head are suffering from "hysterical medicine."
By
Frank Albrecht, PhD
Whitewash: CDC Report Misses the
Mark
The Inspector General's report on CDC misspending of CFIDS
research funds fails to address the harm done.
By
Joseph Lane
To This
Disease
Poetry
By Steve DuPre
Book
Reviews
JoWynn Johns reviews The CFIDS Helpbook: A Guide for
Managing Your CFIDS, by Bruce Campbell. Also, a new personal health
journal.
From the
editor:
You played a major role in preparing this issue of
the Chronicle,
and we’re delighted. More than 800 of you responded to the 1999 Reader Survey. Results begin on page 6.
However, you’ve presented us with some challenges.
To help us meet
them, the Chronicle is seeking a number of volunteers who can be “reporters,” talking to health-care
providers and reporting their experience with specific treatments or conducting in-depth interviews, such
as the one on page 11 of this issue. Experience with journalistic or academic writing is preferred. This
is an opportunity to expand your own knowledge of CFIDS while benefiting your fellow readers. If you’d
like to be part of expanding the Chronicle’s treatment and research coverage, please drop us a
note.
David M. Hoh, Editor
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