It is amazing what people can do when they work together--especially when those people have chronic fatigue syndrome (CFS). They understand that by combining their strength, goals can be met, disabilities can be surmounted and a difference can be made in the lives of CFIDS patients. An outstanding example of this philosophy is the New Jersey CFS Association (NJCFSA).

When leaders of NJCFSA incorporated their association, they realized that to best serve their membership they had to become a true state organization, not just a network of local support groups. Projects undertaken were chosen because they would help the mainstream medical community as well as the general public understand CFS. Two recent projects are the signing into law of New Jersey CFS Bill A-507 and the first annual scholarship award.   

Monumental bill passes
On April 16, 1999, New Jersey CFS Bill A-507 was signed into law by Governor Christine Todd Whitman. This legislation directs the state's Department of Health and Senior Services to establish medical education and public awareness programs on CFS. It also appropriates $95,000 for the Department to create a physician's manual on the diagnosis, treatment and management of CFS patients.

This manual will be made available to health care providers throughout the state and will be developed in consultation with NJCFSA, the Academy of Medicine of New Jersey and the University of Medicine and Dentistry of New Jersey, where federally funded CFS research is conducted. 

Scholarship funded
Because NJCFSA is committed to increasing public awareness of the educational difficulties of young persons with CFS, they have sponsored a $1,000 youth scholarship. This annual scholarship is offered to a New Jersey high school senior who has been diagnosed with CFS and has applied, been accepted and enrolled, either full time or part time, in a college, university or accredited technical school. The first award was made to Joseph A. Amoroso in June.

What makes this scholarship different is that less emphasis is placed upon grade point average and academic achievements. Knowing the cognitive difficulties associated with CFS, applicants were judged by their other merits, the sincerity of their essay and financial need.

These are just two of the many accomplishments of NJCFSA. This state organization is an exceptional role model, as they are truly dedicated to making a difference in the lives of their members. 
 NJCFSA can be contacted by writing to Ted Nilson, President, PO Box 841, Chatham, NJ 07928 or by calling 973/635-4361.