RETURN TO TABLE OF
September - October 1999
One to One
A sharing of tips, strategies, ideas and helpful thoughts
from one person with CFIDS to another
Home care tips for the brain-fogged: mark thick
rubber bands with the names of chores. Put the rubber band with the name of the
chore you are going to do that day on your wrist (make sure it fits loosely),
and wear it until the chore is finished.
When you cook, set up a timer
for each burner or oven you turn on. Set it for as long as the food should cook
on that burner. Then lie down on the floor in front of the stove with a pillow
and blanket and wait for the timer to ring. Put the timer by the burner so you
can tell which one to check. Don't leave the kitchen until the cooking is
Robin Keys, Baltimore, Md.
I' m responding to Carrie Potts' letter
regarding canker sores. At the end of my third year with CFIDS, I developed a
terrible problem with canker sores and sore spots on my tongue such that I was
unable to eat or speak and could barely drink. I spent a week in the hospital
being treated with anti-viral medication for herpes, and my mouth cleared up but
quickly flared up again. Finally, a doctor suggested the simple treatment of
antacids. I noticed a remarkable difference in 48 hours. The pain rapidly
decreased and the sores were healing quickly.
To avoid exceeding the
recommended dosage of antacids, I switched to a more natural alternative called
Prelief, and I started on a low acid/high alkaline diet. I
also stumbled upon an article recommending Tom's of Maine toothpaste, which
contains less of the foaming agent sodium lauryl sulfate, a contributing cause
of canker sores. After my sores were under control, I stopped taking Prelief and
began taking Echinacea only when I'd have a flare-up. The ulcers seem to flare
up only when I allow my diet to slip too much or when I stop using Tom's of
Erin Patterson, Ellwood City, Pa.
The best thing I've done for my CFIDS is to
watch articles in the Chronicle until I read about a treatment that was
successful for a PWC whose age, gender, length of illness and worst symptoms
were the same as mine. Then I tried that treatment (CoQ10), which increased my
day-to-day functionality by almost 40%. Also, when I need to walk through a
revolving door, I try to time my arrival to be directly after a person with lots
of energy. This way, I have to push very little, if at all.
Chapman, Chicago, Ill.
Dealing with CFIDS isn't easy. I have tried it
all and what has had the most impact on improving my condition was learning to
adjust my thinking. Two books that I have bought on tape have helped me do that.
In The Power is Within You, Louise L. Hay suggests that the way
you think about illness has a tremendous impact on your health. In Why
People Don't Heal and How They Can, Caroline Myss, PhD, explains her theory
that some people carry their illness around and use it to "protect" themselves.
Some of her ideas are a little "far out," but I agree we sometimes use our
illness in a negative way without realizing it.
Also, a tape called "Ken
Cohen's Guide to Healthy Breathing" (available in bookstores or at 800/333-9185)
has been a great help.
Andrea Chervenak, Longwood, Fla.
The success of this section depends on you.
If you have a coping tip, a favorite quotation or a self-care treatment that has
helped you, share it with others. Mark notes "One to One" and please include an
E-mail address or a phone number.