The CFIDS Chronicle
A letter from CFIDS Association
Founder Marc Iverson.
Letters address Chiari malformation, CFS name change,
suicide and other reader concerns.
Dave Hoh departs, Brehio comes on
CFIDS researcher is investigated, new players take over
at NIH and the ampligen advisory board meeting is postponed.
CFIDS Advocacy and Association
The latest from Capitol Hill and government agencies,
including training sessions on the new Social Security disability ruling,
plans for expanding health care provider education programs and a victory in
an important court case.
By Vicki Walker
NJCFSA Works to
Improve Lives of Patients
The New Jersey CFS Association (NJCFSA) sets a good
example by tackling new legislation and funding a youth scholarship.
By Kris Hopkins
Bicycling within My Limits
A bicycle becomes a symbol of
wellness, hope and contact with the outside world.
By Jenny Barnes
The Dating Game,
Humor helps alleviate the pain and awkwardness of seeking
romance while dealing with chronic illness.
The Silent Teacher
The power of positive thinking
allows a patient to view "surrendering" to illness differently.
By Linda Carol Baker
Writing as Self-Help for Persons with
Lists, letters, journals and poetry can all present ways
to stay organized and explore your thoughts.
By Betty Sue Fox
Understanding Our Energy
Learning to respect boundaries can lead to freedom.
One to One
Tips, ideas and inspiration from one
PWC to another.
Commentary and Reviews
Letter to My Physician
A quest for treatment serves as an example to medical
professionals who believe that "nothing can be done" for CFIDS.
By Hanna Fingeret
Winning at All Costs
The increasingly competitive
political game of gaining research funding for CFIDS may be hurting the
chances of finding a cure.
By Matthew Chute
Susan Dion reviews Facing and Fighting Fatigue: A
From the editor:
This issue shows ground is being gained, from the
of wrongdoing to news of a new prevalence study. I am familiar with the challenges posed by changing perceptions
of medical conditions that have been shunned or deemed purely psychological, and feel fortunate to be
joining the Association at a time when there is much opportunity to take public relations and publications
one step further.
We are currently evaluating better ways to deliver information to many
audiences, including a new format for the Chronicle. Rest assured we recognize your need to stay in touch
with new developments, especially in the area of treatment. The Chronicle will continue to be a lifeline
for those who need it most--individuals with CFIDS who are looking for progress.
Renee Brehio, Editor