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In This Issue
September/October 1999
The CFIDS Chronicle

Features

Departments

    Founder's Forum
    A letter from CFIDS Association Founder Marc Iverson.

    Readers' Forum
    Letters address Chiari malformation, CFS name change, suicide and other reader concerns.

    Media Watch

    Association News
    Dave Hoh departs, Brehio comes on board.

    CFIDS News
    CFIDS researcher is investigated, new players take over at NIH and the ampligen advisory board meeting is postponed.


    CFIDS Advocacy and Association News
    D.C. Dispatch
    The latest from Capitol Hill and government agencies, including training sessions on the new Social Security disability ruling, plans for expanding health care provider education programs and a victory in an important court case.
    By Vicki Walker

    NJCFSA Works to Improve Lives of Patients
    The New Jersey CFS Association (NJCFSA) sets a good example by tackling new legislation and funding a youth scholarship.
    By Kris Hopkins


    Living With CFIDS
    Bicycling within My Limits
    A bicycle becomes a symbol of wellness, hope and contact with the outside world.
    By Jenny Barnes

    The Dating Game, CFIDS-Style
    Humor helps alleviate the pain and awkwardness of seeking romance while dealing with chronic illness.
    By Lily Gregory

    The Silent Teacher
    The power of positive thinking allows a patient to view "surrendering" to illness differently.
    By Linda Carol Baker

    Writing as Self-Help for Persons with CFIDS
    Lists, letters, journals and poetry can all present ways to stay organized and explore your thoughts.
    By Betty Sue Fox

    Understanding Our Energy Envelope
    Learning to respect boundaries can lead to freedom.
    By Thomas Oates

    One to One
    Tips, ideas and inspiration from one PWC to another.


    Commentary and Reviews
    A Letter to My Physician
    A quest for treatment serves as an example to medical professionals who believe that "nothing can be done" for CFIDS.
    By Hanna Fingeret

    Winning at All Costs
    The increasingly competitive political game of gaining research funding for CFIDS may be hurting the chances of finding a cure.
    By Matthew Chute

    Book Reviews
    Susan Dion reviews Facing and Fighting Fatigue: A Practical Approach.




From the editor:

This issue shows ground is being gained, from the CDC’s admission of wrongdoing to news of a new prevalence study. I am familiar with the challenges posed by changing perceptions of medical conditions that have been shunned or deemed purely psychological, and feel fortunate to be joining the Association at a time when there is much opportunity to take public relations and publications one step further. 

We are currently evaluating better ways to deliver information to many audiences, including a new format for the Chronicle. Rest assured we recognize your need to stay in touch with new developments, especially in the area of treatment. The Chronicle will continue to be a lifeline for those who need it most--individuals with CFIDS who are looking for progress. 

Renee Brehio, Editor