TO TABLE OF
November - December 1999
dialogue with Association members
November 5, 1999
One facet of the
The CFIDS Association of America's
mission is to "stimulate high quality CFIDS research," and we take that charge very seriously. Many of
our current and ongoing initiatives are dedicated to fulfilling this important cornerstone of our mission.
CFIDS Chronicle. The Chronicle keeps you up-to-date on the latest CFIDS breakthroughs
in both mainstream and alternative medicine. This issue alone provides a wealth of information about a
wide range of research topics. We bring you news from a CFIDS conference in Belgium where more than 40
scientists presented their findings. A longer Research News section offers an update on advances in studying
pediatric CFIDS. And an article on a new prevalence study shows how researchers are debunking some of
the myths surrounding our illness.
The Chronicle also brings you insight on how individuals
are coping with and treating their CFIDS symptoms---information that can make your own daily struggle
easier. Turn to page 14 for a report on the use of B-12 injections to
boost energy levels or page 22 for an interview with a neurosurgeon
on whether surgery for Chiari malformation and cervical stenosis can help.
newsletter. It is crucial that we bring knowledge of promising emerging science to physicians
as well as patients. To this end, we are planning for a medical newsletter on CFIDS, which will make its
debut early next year. The newsletter will be mailed to health care professionals to enhance the legitimacy
of CFIDS as a serious medical condition and keep them informed of progress on research and treatment.
Association members also will receive the newsletter in addition to the Chronicle.
workshops. Just publishing top- notch information about CFIDS isn't enough. We must recruit "fresh
blood" to join the research effort, in the form of scientists who can contribute unique experience from
related fields to the search for answers. Early next year the Association willsponsor the first in a series
of scientifc workshops that will bring together CFIDS experts and well-respected researchers from other
fields to explore promising leads and assess priorities. Our goal is to expand the number of investigators
and to improve the number and quality of applications for federal research funds.
advocacy. Another way the Association works to accelerate the pace of research is by advocating
for it on Capitol Hill. We are fighting to ensure that CFIDS has a place on the national research agenda.
If Congress does not mandate that CFIDS is a top health priority, funding for its study by federal agencies
will drop dramatically.
Recently our efforts paid off when Congress directed the Centers for Disease
Control and Prevention to return the entire $12.9 million that it misspent to the CFIDS research program.
We continue to work to ensure that these restored funds-as well as any other CFIDS research funds-are
used in ways that will help us solve the mysteries of this illness as soon as possible.
you, I look forward with hope to the discovery of biological markers for CFIDS, more effective treatments
and ultimately a cure. CFIDS research is the pathway to wellness and the Association continues to work
diligently to accelerate its pace.
Marc M. Iverson