report on coverage of CFIDS in the mainstream media.
August, Teen Voices. Back-to-school
issue of magazine
written by and for young women includes article "Tired of being tired," by Jessica Lee Higley, a young
person with CFIDS.
August 11, The Detroit News. Article with the title "Painful illness
often mistaken for stress. Doctors don't always correctly diagnose the debilitating fibromyalgia" acknowledges
that some physicians do not believe in the condition. The chief of rheumatology at St. John's Hospital
in Detroit is quoted as saying, "I think the mild to moderate cases respond well to treatment...although
they are not cured. The severe cases who are depressed and chronically ill with it need a lot of psychological
September, Fitness Runner. In its fall issue, the magazine incorrectly states
that "In athletes, the cause [of CFIDS] is often linked to the Epstein-Barr virus." The article does note
that the most common error athletes make in dealing with CFIDS is training harder in the hope of improving
fitness. "This usually makes the condition worse," the author says.
September 13, The Arizona
Republic. Article "Chronic fatigue victim won't let ailment beat him" profiles local resident R.E.
Eck, Jr. The piece notes that despite his illness, Eck still swims and plays softball. "I would never
give in to CFIDS altogether," he says. "But it's a challenge sometimes."
September 20, The
Dallas Morning News. Article reports that Michelle Akers' comeback from CFIDS has helped raise awareness
of the disease and profiles a local patient's struggle with the illness. The complexity of the illness
and its high prevalence are highlighted. The newspaper has published The CFIDS Association of America's
letter to the editor in response to the article, which calls for more research and education and mentions
www.cfids.org. org as a source of more information.
31, PARADE magazine. Two-page feature "Doctor, why am I always so tired?" gives an interview
of the causes and symptoms of CFS. Author Dr. Isadore Rosenfeld admits that he used to be "skeptical
about CFS" but now is convinced that it is a real disorder. He concludes by saying that "If you're
unlucky enough to develop chronic fatigue syndrome, remember: it's not all in your head."
Readers were referred to The Association's address and 1-800 number for more information.
August 26, WMAQ radio in Chicago, Ill., invited Dr.
of DePaul University to discuss his recent study that compared medical trainees' reactions to three names
for CFIDS. Excerpts from the study were published in the July/August 1999 Chronicle. A press
release on the study was picked up by America Online's news service.
September 6, Associated Press
article reports research has linked CFIDS to sleep disorders. The article quotes a University of New Mexico
researcher as saying that some PWCs have abnormalities in the "electrical signals in the brain" that cause
the brain waves associated with drowsy wakefulness and those associated with sleep to occur at the same
October 13, Associated Press article "CDC director apologizes for misspending funds for
chronic fatigue study" covers the recent patient meeting at the agency. "Patients say the slight was about
more than money...CDC's action reinforced a perception among some doctors that their illness is a mental
problem, an excuse for laziness or even a joke."
Thanks to those who have been working with the media to increase awareness
The CFIDS Public Relations (CPR) Team helps to monitor the media and responds to particularly positive
or troublesome news reports. Please clip articles about CFIDS, note the name and date of the publication,
and send to CPR Team, PO Box 220398, Charlotte NC 28222-0398. To join the team and receive alerts
about media coverage, send a note to that address or E-mail to firstname.lastname@example.org.