RETURN TO TABLE OF
November - December 1999
One to One
A sharing of tips, strategies, ideas and
helpful thoughts from one person with CFIDS to another
My tip is to get treatment for past trauma, abuse
or dysfunctional family dynamics, which waste PWCs' precious energy supplies.
Try these strategies:
Learn healthy coping skills. I
have learned that blaming yourself for family problems is a dysfunctional
coping mechanism. Reading Compassion and Self-Hate: An Alternative to
Despair, by Theodore Rubin, helped me.
behavior. I told my therapist that my "to do" list caused
overexertion. She noticed that half of the things on the list were for other
people, so I learned to put myself first more often.
Release built-up emotions. I
wrote about my bad feelings and experiences in a journal and listened to
guided meditation audiotapes such as "Healing Journey" by Emmett Miller and
"Chakra Clearing" by Doreen Virtue (both available at 602/265-6589). I also
went to a massage therapist for chakra clearing treatments and learned quigong
I was diagnosed with CFIDS and fibromyalgia six
years after contracting CMV virus and Epstein Barr virus. I have tried
everything I could get my hands on and spent hundreds of dollars on vitamins and
other alternative therapies. I went to two immunologists and did not do well on
their therapies. Then I received the Summer 1999 (Vol 22) issue of International
Journal of Alternative Therapies, which has an article on an immune system
breakthrough called Immutol tm425. I bought some, and have had no symptoms since
starting it. The Immutol cost $59.99 plus shipping for 60 capsules. For
more information, call 800/446-3063, ext. 364.
Valerie Striba, Bangor,
In the four years that I have had CFIDS, I have
tried countless therapies, treatments and medications, but the following things
in combination have helped me feel "new and improved":
Salt, for neurally-mediated
hypotension. This allowed me to go from bedridden to back to a
full-time sales job. It corrected my dizziness as well. I take one to two salt
capsules a day.
Noni juice. This took me from
a one to a five on a scale of 10 for energy and memory problems.
Avoiding some foods. A
naturopathic doctor drew blood and had it tested four days apart. The results
showed major sensitivities to more than 40 foods. By eliminating those foods,
I went from five to nine and a half.
An herbal mix of panax
ginseng, Siberian ginseng, licorice, whole adrenal, adrenal cortex and calcium
pantothenate (B5). This gives me a boost of energy each day.
A low dose of Trazadone
for sleep disturbances.
Pam Miller, Sauk Centre, Minn.
A natural herbal supplement called Citreem has made
a huge difference in lessening my chronic fatigue symptoms. It is manufactured
by Nature's Body Products, and sells for $35.00 for a month's supply. The
company offers a 100% money back guarantee.
Suzanne Wiley, Scottsdale,
The success of this section depends on you. If
you have a coping tip, a favorite quotation or a self-care treatment that has
helped you, share it with others. Mark notes "One to One" and please include an
E-mail address or a phone number.
Resource on thyroid disease
Individuals with CFIDS who also suffer from
thyroid disease can subscribe to a monthly news update service by signing up on
the web at
The update offers advance notice about conferences, new research,
support group meetings and media coverage.
You can also visit the
Thyroid Disease Information Source and News Report home page at
thyroid.about.com for more general information.
Kathy Martel, Allen,