The CFIDS Chronicle
No more "yuppie
New study from a group of Chicago researchers debunks CFIDS myths,
reveals greater prevalence of the illness.
Recent international conference offered more than 50
presentations on RNase-L, Ampligen, Gulf War illness, the proposed name change
for CFS and other issues.
By Vicki C.
Using vitamin B-12 for
the management of CFS
Injections of high-dose B-12 may help
boost energy levels; a physician reviews how and why.
By Charles Lapp, MD
Eight ways to give
Ideas for contributing
to the Annual Fund, which supports education, public policy and research, are
By Jamie Davis
A summary of recent papers on pediatric CFS/FM, the twins
study, prognosis for severe CFIDS, and more.
Can spinal surgery really
A neurosurgeon talks about data from his study of CFIDS/FM
patients with Chiari malformation or cervical stenosis.
A letter from CFIDS
Association Founder Marc Iverson.
Letters address Akers' treatment, thyroid medications,
post-mortem studies and other reader concerns.
Akers Wheaties box, new pain initiative, help for women
with disabilities, web site on sleep, Straus moves on.
Web site honored, publication changes planned.
CFIDS Advocacy and Association
commits to renewing CFIDS research
At a recent patient
advocate meeting at CDC, agency officials apologized for the mismanagement of
CFS program funds and outlined their plan for getting the program back on
The latest from Capitol Hill and government agencies,
including news of the GAO investigation of CDC, Congressional activity on
CFIDS and new CFS Coordinating Committee nominees.
By Vicki Walker
Handling the holidays: A gift for
This article provides a "survivors' manual" to get you
through what can be an emotionally and physically draining season.
By Lisa Burdick and Bill Gareau
Educating patients about
A program and workbook teach individuals with fibromyalgia
or CFIDS how to get diagnosed, cope with pain and handle work and
By David Hoh
Music in my
An artist follows her dream despite her illness, giving
her creative side an outlet through photography and songwriting.
By Karen Kopacz
The value of therapeutic
Horseback riding can help persons with CFIDS improve their
balance, increase functioning and compete in a sport.
Lost and bound
Poem by Katie
Tips, ideas and inspiration from one PWC to another.
Erika Dillman's The Little Yoga Book; B.E. Synhorst
reviews Illness as a Metaphor.
From the editor:
This issue shows ground is being gained, from the
of wrongdoing to news of a new prevalence study. I am familiar with the challenges posed by changing perceptions
of medical conditions that have been shunned or deemed purely psychological, and feel fortunate to be
joining the Association at a time when there is much opportunity to take public relations and publications
one step further.
We are currently evaluating better ways to deliver information to many
audiences, including a new format for the Chronicle. Rest assured we recognize your need to stay in touch
with new developments, especially in the area of treatment. The Chronicle will continue to be a lifeline
for those who need it most--individuals with CFIDS who are looking for progress.
Renee Brehio, Editor