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In This Issue
November/December 1999
The CFIDS Chronicle

Features

    No more "yuppie flu"
    New study from a group of Chicago researchers debunks CFIDS myths, reveals greater prevalence of the illness.

    Brussels conference report
    Recent international conference offered more than 50 presentations on RNase-L, Ampligen, Gulf War illness, the proposed name change for CFS and other issues.
    By Vicki C. Walker

    Using vitamin B-12 for the management of CFS
    Injections of high-dose B-12 may help boost energy levels; a physician reviews how and why.
    By Charles Lapp, MD

    Eight ways to give
    Ideas for contributing to the Annual Fund, which supports education, public policy and research, are outlined.
    By Jamie Davis

    Research news
    A summary of recent papers on pediatric CFS/FM, the twins study, prognosis for severe CFIDS, and more.

    Can spinal surgery really help?
    A neurosurgeon talks about data from his study of CFIDS/FM patients with Chiari malformation or cervical stenosis.


Departments

    Founder's Forum
    A letter from CFIDS Association Founder Marc Iverson.

    Readers' Forum
    Letters address Akers' treatment, thyroid medications, post-mortem studies and other reader concerns.

    Media Watch

    CFIDS News
    Akers Wheaties box, new pain initiative, help for women with disabilities, web site on sleep, Straus moves on.

    Association News
    Web site honored, publication changes planned.


    CFIDS Advocacy and Association News
    CDC commits to renewing CFIDS research
    At a recent patient advocate meeting at CDC, agency officials apologized for the mismanagement of CFS program funds and outlined their plan for getting the program back on track.
    By Vicki Walker

    D.C. Dispatch
    The latest from Capitol Hill and government agencies, including news of the GAO investigation of CDC, Congressional activity on CFIDS and new CFS Coordinating Committee nominees.
    By Vicki Walker

    Handling the holidays: A gift for yourself
    This article provides a "survivors' manual" to get you through what can be an emotionally and physically draining season.
    By Lisa Burdick and Bill Gareau


    Living With CFIDS
    Educating patients about fibromyalgia
    A program and workbook teach individuals with fibromyalgia or CFIDS how to get diagnosed, cope with pain and handle work and family-related issues.
    By David Hoh

    Music in my sleep
    An artist follows her dream despite her illness, giving her creative side an outlet through photography and songwriting.
    By Karen Kopacz

    The value of therapeutic horsemanship
    Horseback riding can help persons with CFIDS improve their balance, increase functioning and compete in a sport.
    By Kebbie Cannon

    Lost and bound
    Poem by Katie Weatherford

    One to One
    Tips, ideas and inspiration from one PWC to another.


    Commentary and Reviews
    Book Reviews
    Erika Dillman's The Little Yoga Book; B.E. Synhorst reviews Illness as a Metaphor.




From the editor:

This issue shows ground is being gained, from the CDC’s admission of wrongdoing to news of a new prevalence study. I am familiar with the challenges posed by changing perceptions of medical conditions that have been shunned or deemed purely psychological, and feel fortunate to be joining the Association at a time when there is much opportunity to take public relations and publications one step further. 

We are currently evaluating better ways to deliver information to many audiences, including a new format for the Chronicle. Rest assured we recognize your need to stay in touch with new developments, especially in the area of treatment. The Chronicle will continue to be a lifeline for those who need it most--individuals with CFIDS who are looking for progress. 

Renee Brehio, Editor