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In this issue
Winter
2000
The CFIDS Chronicle
Features
The Search for a
Test
Researchers working to find a valid biomarker are
looking at the RNase L antiviral pathway, RNA abnormalities and 5-HIAA, a
neurotransmitter metabolite.
By Renee
Brehio
CDC/NIH
Update
CFIDS and Anesthesia:
What Are the Risks?
Anecdotes abound about PWCs' often difficult recovery
from anesthesia. This article tells you what the doctors say and what you need
to know before having surgery.
By Elisabeth A. Crean
The
Healing Journey: Benefits of Retreats
A CFS
retreat can help build feelings of connection, support and community.
By Patricia Fennell, Elizabeth
Graham, Leonard Jason and Renee Taylor
Students:
Save Energy
This article defines the four types of energy and gives young people
with
CFIDS helpful tips on how to use it wisely.
By Staci R. Stevens
Research
News
A
summary of recent papers on brain abnormalities in CFS, recovery, pain research, respiratory infections,
a peer review of
the CDC's program and more.
Departments
Founder's
Forum
A letter from CFIDS Association Founder Marc
Iverson.
Reader's Forum
Letters address recovery,
pediatric patients, learning to live within your limits and other reader
concerns.
Media
Watch
Association
News
Changes to Board,
1999 Annual Fund and web site honored.
CFIDS News
Klonopin
recalled, athlete PWCs in the news, documentary nears completion, Keith
Jarrett talks about CFIDS.
CFIDS Advocacy and
Association News
D.C. Dispatch
The latest from
Capitol Hill and government agencies, including news on the last CFSCC
meeting, Congressional health bills and Lobby Day.
By Vicki Walker
Taking Time to Say
Thank You
The annual winners
of the CSN ACTION and Champion awards are announced.
By
Kris Hopkins
Living With CFIDS
Chronic Illness and the
Internet
One PWC recounts how she
uses her computer as a lifeline to the outside world, including searching for
medical information, shopping and keeping in touch with friends and family.
By Jennie Floyd
Finding New Meaning
in Life Through Spiritual Focus
A view on how illness can help you come to grips with who you really
are, explore your own spirituality and cope with the changes in your life.
By Reg Moore
One to
One
Tips, ideas and inspiration from
one PWC to another.
Commentary and Reviews
Dear
Diary
This
fictional account of four days in a PWC's life provides a humorous look at how
far individuals can go to find a cure.
By Nan Talbot
My Research Wish List for Year 2000
This
action plan for how the CDC can reinvigorate the CFS program is intended to bring a ray of hope to those
discouraged
by agency's neglect.
By Terry Hedrick, PhD
From the editor:
In the last issue, I mentioned the
value of change. Hopefully you
can see that value as you read the premier issue of The CFS Research Review, a newsletter aimed at health
care professionals that will be mailed to you along with each issue of the Chronicle.
This newsletter
will be sent to physicians, nurses, researchers, public policy makers and others. Some will already be
familiar with CFIDS. Others will need to be educated. By bringing this audience credible research and
treatment information, we can impress upon them that CFIDS deserves their attention.
Watch for
more changes in the next set of issues. The Chronicle will be undergoing a "facelift" in the spring to
help us give you the crucial information you need in an easier-to-read format.
As always, I look
forward to your feedback on the Association’s publications.
Renee Brehio, Editor
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