Activities and opportunities from The CFIDS Association
It's annual report time
If you donated
more than $50 to the Association (in addition to your membership fee), watch your mailbox over the next
month or so for your copy of The CFIDS Association's 1999 Annual Report, which will update you on the
progress the Association has made in accelerating the fight against CFIDS.
The report details
the actions the Association has taken and acknowledges the role of those who have made a financial contribution
to support our work. The Annual Report is available at no charge to all who ask and will be posted on
the Association's web site (www.cfids.org) this summer.
Association attends definition
CDC convened a closed-door workshop April 30 through May 3 in Pine Mountain, Ga., to "critically evaluate
published and unpublished information from population-based and clinical studies that impact on the CFS
It was not expected that a new case definition would emerge from this meeting,
as participants were asked to share their views about whether additional study should be done before work
proceeds with a revision of the case definition. Given the far-reaching consequences of changing the definition
for research, clinical diagnosis and disability benefits, the Association supported the cautious pace.
Association President/ CEO Kim Kenney was asked to participate in this meeting to discuss the impact of
the case definition on educating health care providers about CFS. For a list of other individuals asked
to participate, visit the CDC's web site at www.cdc.gov and search for
CFS. A report on this meeting will be published in an upcoming issue of The CFIDS Chronicle.