CFIDS Association of America
working to make CFS widely understood, diagnosable, curable and preventable
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Spring 2000

Book Reviews
Your guide to published resources

The Virus Within: A Coming Epidemic
By Nicholas Regush
2000, Dutton, $24.95
Review by Lisa Lorden
(excerpted from www.chronicfatigue.about.com)
Nicholas Regush, an award-winning medical writer and science journalist for ABC News, recounts ongoing research that he claims reveals the frightening power of Human Herpesvirus-6, or HHV-6. HHV-6 has been implicated in a variety of illnesses, including chronic fatigue syndrome (CFS), multiple sclerosis, AIDS and some forms of cancer. The book focuses on the work of two scientists, Konnie Knox and Donald Carrigan, who believe that a variety of factors might "trigger" the virus and allow it to attack key cells in the body. 

While Regush devotes a significant part of the book to the role of HHV-6 in CFS, it has implications for everyone in exploring what he believes could be a profound health threat. He outlines research that could change the way we understand diseases and influence the direction of future investigation into viable treatments.

For those who find typical "scientific" literature dry or hard to follow, this book reads more like a mystery thriller, complete with personality and politics, triumphs and disappointments, controversy and intrigue. Whether or not his conclusions turn out to be true, the book's skillful storytelling makes for a very interesting read.

Alternative Treatments for Fibromyalgia & Chronic Fatigue Syndrome
By Mari Skelly and Andrea Helm
1999, Hunter House, $15.95

When conventional medicine fails to help enough, where do you turn? This book is a helpful aid for individuals who want to hear what others with fibro-myalgia or CFS have to say about their experiences. 

The authors take a balanced approach to treatment, and note that although the book focuses predominantly on alternative therapies, readers should consider the full range of options available. Topics covered include osteopathy, Chinese medicine, nutrition and yoga, as well traditional medicine.

Each chapter includes a "patient's story." Most of the stories are more inspirational-focusing on personal philosophies-but some include tips and suggestions regarding particular therapies. 

Essays by experts in each field of alternative medicine are also included to provide a broader medical perspective, and contact information for each practitioner mentioned is listed at the back of the book.

Zoe's Win
By Jane Colby, Children's Officer, Action for ME 2000, Dome Vision
Review by Rebecca C. Moore
Jane Colby's new book, Zoe's Win, addresses the challenge of helping children with myalgic encephalomyelitis (ME) adapt to their limitations and find new ways to excel. The first section tells the story of Zoe, an 11-year-old with ME. Colby sensitively discusses issues such as the difficulty of accepting the rapid changes caused by illness; education, adaptation and pacing as positive coping mechanisms; and the blessing of friendship within the community of young patients.

Part two contains information for educators and physicians.  It explains the impact of symptoms such as fatigue, pain and neurocognitive problems on a child's ability to learn. Colby emphasizes the importance of adapting academic curricula and exams for young persons with ME. Part two also includes information from a study of the impact of pediatric ME on education in the UK and a "collaborative care model."

Although families facing CFS/ME will need information resources beyond what this book provides the sensitive discussion of the feelings and questions many kids with ME face. Zoe's Win should be much appreciated by the reader.

 


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