TO TABLE OF
A sharing of tips,
strategies, ideas and helpful
thoughts from one person with CFIDS to another
Use the workcamp program
Many church denominations throughout the
in the Ecumenical Workcamp Program for teenagers. The church has a list of teens who will work to earn
money to pay for a week in the summer repairing houses for the poor. You pay very little for a huge return.
For us, they grocery shop, clean our house and yard regularly, befriend our son who also has CFIDS, run
errands, cook, wrap Christmas and birthday presents and much more. These teenagers have been exceptionally
reliable and bring us much joy.
Gracie McNiff, Burke, Va.
Take baby steps
One thing that has helped my husband and me is
to break things
down into smaller, more manageable "baby steps." Here are some of our tips.
Take several days to write letters or checks. This leaves plenty of time
for getting the
envelopes ready, writing and double-checking.
Bake or grill food when you are able and freeze it in individual servings.
I still cannot
prepare a meal and eat it immediately after.
Spread out holidays or gift-giving. We take a three-week period for birthdays
We also give each other "love gifts" like massages and hugs, which don't require the visits to the store,
wrapping and unwrapping that sap our stamina.
Set limits on visiting times. When visiting our children and grandchildren,
we set a "one
hour limit" on time spent together and then rest so we can unwind and be ready for more.
Linnie Baker, Venice, Fla.
Get medications for free
I have found a web site from which you
can apply for
free or almost free prescription medications, www.themedicineprogram.com.
There is a little red tape/paperwork involved, but it is definitely still worthwhile.
is low income, no insurance coverage for outpatient prescription drugs, inability to qualify for a government
program that provides for prescription medication (such as Medicaid) and referral from a physician. Medications
are sent to the patient's physician to be dispensed to them. The rules vary a little for each drug. If
you don't have access to the Internet, you can call the program at 573/996-7300.
Winter Park, Fla.
Release your anger
To diminish negative feelings, hit a punching
bag or a big soft pillow. Yell "Take that!" or say any phrase that makes you feel a deep sense of release.
Cry if you need to. Or laugh. Laughter is a great antidote to anger. You can't frown and laugh at the
Tips for Coping with Chronic Illness, by Pamela D. Jacobs, MA. 1997:
Robert D. Reed Publishers.
The success of this section
depends on you. If you have a coping tip, a favorite quotation or a self-care
treatment that has helped you, share it with others. Mark notes "One to One" and
please include an e-mail address or a phone number.
Manage your diet
The Chronicle receives many letters about food allergies. One resource
that crossed our editorial desk recently is a 200-page cookbook called Special Diet Solutions.
Written by a former university professor who suffers from wheat sensitivity, the cookbook provides recipes
that do not include wheat, gluten, dairy, eggs, yeast or refined sugar.
The book, which costs
$15.00, can be ordered through www.Amazon.com or from the publisher
(add $3 shipping and handling) at Savory Palate, Inc., 8174 South Holly, PMB #404, Littleton, CO 80122-4004.
free source of
recipes and links to food-related sites can be found on the Chronic Immune and
Neurological Diseases Association (CINDA) web site at (link no longer active). Just click
on the menu option "Yummies" at the bottom of the home page.