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RETURN
TO TABLE OF
CONTENTS Summer 2000
Message to Members Association
makes strides
in physician education
Chronic fatigue and immune dysfunction syndrome (CFIDS) has a variety of presentations.
Symptoms
vary. Illness severity fluctuates over time and among patients. Functional limitations change. But when
two or more persons with CFIDS gather, one topic of conversation is inevitable—the deplorable treatment
they receive from medical professionals.
Since the Association’s inception, its leaders have been
sensitive to these negative experiences. But until recently we haven’t had the resources to engage the
medical community in meaningful education about CFIDS.
The creation of The CFS Research Review
is the first step toward providing regular information to medical professionals. Thanks to member support,
the Review now reaches more than 7,000 people working in many different health care settings.
This
fall, in partnership with the Illinois Area Health Education Center (AHEC), the Association will begin
to expand opportunities for primary care providers to learn about CFIDS. Funding from the Centers for
Disease Control and Prevention (CDC) and the Health Resources and Services Administration (HRSA) and the
addition of health educator Teresa A. Lupton, BSS, RN, to the staff, represent the first milestones in
accomplishing our goal.
Our CFS curriculum made its debut at the American Association of Physician
Assistants meeting in Chicago in May. Dr. Charles Lapp presented it to nearly 200 physician assistants,
nearly all of whom reported improved understanding of the diagnosis and management of CFS following the
one-hour session.
These are small steps toward making knowledgeable and compassionate care of CFIDS
patients universal, but we are committed to this goal and are grateful for the support of members and
the CDC, Illinois AHEC and HRSA.
K. Kimberly Kenney President
& CEO kkenney@cfids.org
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