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Winter 2001

One to One
A sharing of tips, strategies, ideas and helpful thoughts from one person with CFIDS to another

Moving made easier
The challenges of a major move are astounding. I don't think I could have so smoothly made the transition or dealt with the several relapses I had when I moved from Santa Barbara, Calif., to Santa Fe, N.M., if I had not found and developed an infrastructure of supportive physicians, therapists, and a CFIDS support group.

This new support system formed the foundation for my health care and integrated me into the community. If you are facing a move, you, too, need these local resources and contacts to support your healing process during and after the move.
Peter Anastasia, Santa Fe, N.M.

When friends want to help
When friends stop by to visit, they often ask me what they can do to help. But I often can't remember what household chores need to be done.

To remedy this, I hung a white board on my wall and listed some quick jobs (take out trash, wash dishes) as well as longer special projects (do the laundry or sweep porch).

Now when friends ask what they can do to help, I no longer have to struggle to remember. They can pick something appropriate to their time and are glad to be useful.
Patricia Stegman, New Freedom, Pa.

Sinus relief
I am intolerant of medications and thought I'd never find anything to alleviate my chronic coughing and sinus/allergy problems until I found SinuCleanse, a drugfree nasal irrigation system.

I recommend it highly, as it has worked better than anything I've tried. I ordered this on the Internet and received it quickly. I have no affiliation with this company other than as a customer.
Nancy L. Stewart, Lakeside, Ariz.
[Editor's correction: In the fall 2000 issue of the Chronicle the ".com" was missing from the e-mail SynergyHN@aol.com address given in the "One to One " sleep tip.]

The success of this section depends on you. If you have a coping tip, share it with others. Mark notes "One to One" and please include an E-mail address or a phone number.


BEING ILL DOESN’T MEAN NOT HAVING RIGHTS
It is all too easy for persons with CFIDS (PWCs) to feel as if they no longer matter, but PWCs still have rights, even if they can no longer do the things they once did. I find it helpful to think carefully about what my own rights are and balance them against the rights of those around me when communicating with others, particularly those who don’t understand chronic illnesses. Your own list of rights should reflect your circumstances, but these are my rights. I have the right to:
  • Ask anyone for anything while respecting their right to say no
  • Say no myself without feeling guilty
  • Choose whether or not to get involved in the problems of someone else
  • Look after myself and not be pushed into doing something that might jeopardize my health or well-being
  • Use a reasonable amount of my available energy for pleasure
  • Have different abilities and needs depending on the fluctuations of my illnesses
  • Choose what help I will accept
  • Be consulted about decisions that will affect me
  • Give as well as receive
  • Have emotions and care about what is happening to me
  • Be confused about my health and its effect on my life
  • Be kind and forgiving to myself for things I cannot help and mistakes I make
  • Believe that being is as important as doing
  • Not feel guilty about being ill

--by Frankie Campling