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Keeping you up-to-date
on recent events across the nation and around the world
Film gains momentum
Kim A. Snyder, a person with CFIDS (PWC), has
been honored several times
for her documentary "I Remember Me."
The film tells of her five-year journey of living with CFIDS and is helping to raise
awareness of the
illness. The film received an Honorary Mention at the 2000 Hamptons International Film Festival, was named
Winner, Best Documentary, at the Denver Inter-national Film Festival, and was first runner-up at the Sarasota
The documentary was also screened at film festivals in Santa Barbara, Calif., March
1-11, and Cleveland,
Ohio, March 22-23, and in Taos, N.M, April 5-8.
Eastman Kodak hosted a screening April 10 in Los Angeles and the film has been accepted
at a Finland
film festival as well.
Clinical definitions established in Canada
The National Myalgic
Encephalomyelitis (ME)/Fibromyalgia (FM) Action Network, a nonprofit Canadian patient advocacy organization,
has succeeded in getting a consensus on the clinical
definitions and diagnostic and treatment protocols for ME and FM.
The organization recruited physicians to create a draft document and convinced Canadian
to establish a panel of experts, including researchers and physicians from the United States, to review
and agree upon final language. In Canada, the terms ME and CFS are used interchangeably. The group purposefully
did not take up the name issue in its work.
While the international CFS case definition is intended only to help guide research,
the Canadian definitions
and protocols have been developed to assist clinicians in diagnosing and treating patients. The panel
completed its work in late March, and the Action Network is submitting the definitions and protocols to
a Canadian medical journal. The documents will not be publicly available until they are published.
ICD codes posted
The International Classification of Diseases (ICD) diagnostic codes, assigned
by the World Health Organization, impact Social Security and long-term disability eligibility and reimbursement
for medical services by third-party payers.
The National Center for Health Statistics
has posted a summary of CFS and ICD codes [Chronicle web link] for the United
States and other countries on the Department of Human Health and Services
Chronic Fatigue Syndrome Coordinating Committee Web site. (Document no
longer exists on that site.)
Alliance formed to develop FM treatments
Cypress Bioscience, Inc. and Georgetown
Medical school announced a research agreement to identify and develop therapies to treat FM. Dr. Daniel
Clauw, Chief of the Division of Rheumatology, will direct the program.
Ampligen denied fast
The Food and Drug Administration recently denied Ampligen fast track status, a process aimed
at shortening the length of time it takes for important new drugs to get to the market.
publication by PWC
Floyd Skloot, a PWC and a four-time finalist for the Oregon Book Award, has
published a second poetry collection. The Evening Light examines surviving a chronic illness.
His second collection of poems is available through Story Line Press. Contact email@example.com
or call 541/512-8792 for additional details.