with the Chronicle editor
CDC study flawed
As a person with chronic fatigue and immune dysfunction syndrome
I wish to shout from the housetops my reaction to the article in the fall 2000 issue of the Chronicle
regarding the Centers for Disease Controlís (CDCís) efforts to find an association between human herpesvirus
6 (HHV-6) and CFIDS.
Up to 98% of the population will test positive for inactive HHV-6. Therefore,
it is important
to study active HHV-6 when exploring a possible link between HHV-6 and CFIDS.
The CDC, which studied inactive HHV-6, has wasted precious public money in CFIDS research.
I wish they
would have realized sooner what thousands of us have been saying all along, "Itís the ACTIVE HHV-6 virus."
Meissner, Las Cruces, N.M.
Comments on Chronicle
The story about therapeutic touch (TT) being
bogus made many
major newspapers in the country. The fourth grader [Emily Rosa] who debunked it appeared on "The Today
Show," "Good Morning America," and "Fox News," not to mention radio shows and in magazine articles (like
Time, Newsweek, and others).
The TT article published in the winter 2000 Chronicle was written as if it were
treatment modality for CFIDS. It certainly wasnít presented as a temporary endorphin-releasing therapy
dependent on belief in it.
CFIDS doesnít need any more negative publicity. If the wrong person sees the article,
they can use
it to point out that CFIDS patients are nutty.
The Chronic Fatigue Syndrome Forum
For those interested in an objective evaluation of the scientific evidence regarding
TT, the Annals
of Internal Medicine (June 2000) published a
meta-analysis of research in TT. Emily Rosaís study did not measure up to the scientific standards required
I urge all patients and clinicians to base their treatments on scientific evidence as
much as possible
and not to fear potential treatments [such as TT] simply because their mechanisms of action are not yet
understood. After all, scientists have only come to understand the mechanisms of aspirin in just the past
William Collinge, Ph.D., M.P.H.
Frontier Medicine Panel, National Center for Complementary
and Alternative Medicine, National Institutes of Health
[Editorís Note: The Association is a clearinghouse for information of interest to people
and does not endorse any treatment models. The article was intended only to inform readers that TT may
improve feelings of well-being.]
If it had not been for the Associationís publications, I do not believe I would have
the courage or
strength to maintain my hope and dignity of human spirit. The Associationís assistance has proved to be
my lifeline in accessing pertinent data, research, and informational resources. Because of the Chronicle,
I am, and always will be, most indebted to your services.
E.J. Collins, Salt Lake City, Utah
NPs important providersWhen I read the article, "New
Choices in Medical Professionals," in the fall 2000 Chronicle, I was
disappointed that nurse practioners (NPs) were not included. NPs provide
high-quality care and are often ideal providers for the chronically ill.
Diana F. Barron, M.S., C.P.N.P., Baltimore Maryland