RETURN TO TABLE OF
CONTENTS Summer 2001
Support Network Who Wants to Be a CSN
Member?
By Kris Hopkins
What is a CSN member and why would you want to be one? Here's
a quick quiz to help you find out!
CSN stands for: (HINT: It
has something to do with CFIDS)
A. Cider, Saltines and Nutmeg
B. Coral, Scarlet and Nectarine
C. California, South Dakota and Nebraska
D. The CFIDS Support Network (CSN) of America
The correct answer is D. The CFIDS Sup-port Network (CSN) of
America is a network of CFIDS support group leaders, contacts and members.
That question was pretty easy. Here s a harder one:
Who can become a member of the CFIDS Support Network
(CSN) of America?
A. Support Group Leaders
B. Support Group Contacts
C. Active Support Group Members
D. Individuals providing support to CFIDS
patients
This is actually a trick question, as everyone listed can
become a CSN member. Why? CSN has a lot to offer anyone who provides support and
education to the CFIDS community.
Currently, more than 180 support groups across the country
have joined together through CSN to support, encourage and educate each other.
CSN is dedicated to providing support group leaders and their members with the
foundation needed to create positive and successful support groups.
How does CSN meet this goal? By providing CSN members with
information that is designed specifically to address the needs of support
groups.
CSN members receive two updates each month (yes, each month!).
One update contains information on the latest CFIDS research, treatment and
public policy news; the second provides information on resources specifically
designed for support groups. These updates are a great way to keep your support
group informed of the latest news in between issues of The CFIDS
Chronicle.
CSN members also have the opportunity to communicate directly
with other CSN members on a regular basis. Free CSN Support Group conference
calls are held bi-monthly so leaders can talk with one another about issues
and/or challenges they are facing. Topics range from how to educate physicians
to preparing for Awareness Day activities to preventing leader burnout.
One essential benefit of becoming a CSN member is the CFIDS
Support Group Leader Handbook. Topics include basic information on starting a
group, maintaining a telephone network and suggestions for creating support
group resources such as a Physician Referral list or a Disability Guidance
committee. This valuable resource can be placed in a three-ring binder so
additional information can be added in the future.
Does your support group work to educate others about CFIDS?
CSN wants to help! CSN members are entitled to discounts of up to 50% on
educational materials offered by the Association. Members also receive 200 free
copies per year of the Association s brochure, "Introducing CFIDS," and 250
postage-paid inquiry postcards for distribution at support group meetings or
other events.
We invite you to find out about all of the membership benefits
that CSN members enjoy! For more information, please call Kris Hopkins or Nova
Bouknight at 704-364-0466, send an e-mail to
csn@cfids.org, or send your name and address to
The CFIDS Association of America, Attn: CSN Membership, PO Box 220398,
Charlotte, NC 28222-0398.
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