TABLE OF CONTENTS
Keeping you up-to-date on recent
events across the nation and around the world
WHO guide protested
booklet published under the auspices of the World Health Organization (WHO) has
caused widespread anger in the CFIDS community because it classifies the disease
as a psychiatric illness.
The booklet, "WHO Guide to Mental Health
Primary Care," was developed by the WHO Collaborating Centre at the Institute of
Psychiatry of Kings College in London. The booklet carries the WHO's name but is
not officially endorsed by the organization.
The designation of CFIDS as a mental
disorder contradicts the WHO's own classification of chronic fatigue syndrome
under illnesses of the nervous system and the brain. The CFIDS Association of
America has joined a host of other CFIDS advocacy groups in filing letters of
protest with the authors and WHO. As of press time, officials at the WHO
Collaborating Centre have declined to change their classification.
"I Remember Me" debuts
Kim Snyder's award-winning documentary "I Remember Me" was scheduled to make its
theater debut on Nov. 9 in New York City. The film chronicles her five-year
struggle with CFIDS. "I Remember Me" has won critical acclaim at a number of
film festivals across the country - including the best documentary award at the
Denver Film Festival. Plans for a limited theater release of the film were
pending at press time.
"I Remember Me" was scheduled for a
two-week run at The Screening Room, 54 Varick St. in Manhattan. For more
information on the film, check Snyder's Web site,
Gulf war benefits grow
has expanded disability benefits for Persian Gulf war veterans who have
developed CFIDS or fibromyalgia (FM) since the 1991 conflict. The law closes an
odd loophole that had denied some vets coverage. Until the law passed, veterans
with a formal diagnosis of CFIDS, FM or similar diseases were denied benefits -
while those who had the same symptoms but had not received a diagnosis were
granted medical and other benefits.
In another Gulf war development, British
defense officials said that tests on their veterans showed no trace of Gulf War
Syndrome. Thousands of U.S. and British vets have complained of symptoms ranging
from the flu to asthma and chronic fatigue since serving in the conflict. A
recent survey published in the British Medical Journal found that 17
percent of British servicemen believe they have the syndrome.
Name change draft available
Name Change Working Group of the federal CFS Coordinating Committee (CFSCC) has
been meeting every two weeks for the past 18 months to build consensus on an
alternative to "chronic fatigue syndrome." The group has released a draft of its
recommendations and is interested in feedback from persons with CFIDS, medical
professionals and other interested parties. The alternative term proposed by the
group is Chronic Neuroendocrine-immune Dysfunction Syndrome (CNDS).
To view and respond to the group's
which include a rationale for the term, visit the
Association's Web site at
or send self-addressed, stamped envelope marked "Name Change" to the PO Box
address on the inside cover of this issue. The working group will prepare final
recommendations for the next meeting of the CFSCC, which has not yet been
announced but is unlikely to take place before year-end.