Chronicle Issues
  Research Review Issues
  CFIDSLink
E-newsletter
  Reprint Policies
RETURN TO TABLE OF CONTENTS
Summer 2001

One to One
Tips, strategies and helpful thoughts about CFIDS

Sleeping under a "tent"
I experience such severe knee and foot pain that even light bedcovers hurt when I try to sleep. To address this, I purchased a lightweight metal frame that holds the bedcovers in a "tent" above my feet at night. I also use a "fat" light switch adapter that fits over my tiny lamp switch to reduce my hand pain. These and many other items can be purchased though mail order catalogs. Two such catalogs are Functional Solutions (1-800-235-7054) and Aids for Arthritis and Fibromyalgia (1-800-654-0707).
Rebecca Becker-Bean, New Jersey

Feel-good destinations
When I travel to certain locations, I am suddenly virtually cured of my CFS. Even when I stay in these "good" places for months, I do not revert to feeling badly. I have rated how well I feel in various places that I have visited, from 0 to 10 (0 is unbearable and 10 is fully cured):

9:   Cuba; coast of northern Peru (avoid in September and October)
8:   The Yucatan, Mexico (avoid in September and October)
4:   Mexicali, Baja California (desert)
3:   Winnipeg; San Diego; Houston; Florida; Quito, Ecuador; Mexico City; San Jose, Costa Rica
2:   Toronto; New York

I am hoping to hear about others who have had similar improvements and where they have gone. You can send me your ratings via e-mail at p_beith@yahoo.com.
Paul Beith, Toronto, Canada

Watch for carbon monoxide
As winter approaches, many people will be turning on their heaters for the first time in months. I want to warn everyone about the need for carbon monoxide detectors on each floor of their homes. This is especially important for people with CFIDS, since the symptoms of carbon monoxide poison-ing and CFIDS overlap.

I began feeling progressively worse early last winter, and figured that I was having a bad CFIDS flare-up. In fact, the upper two floors of our house were being flooded with carbon monoxide because our heater had developed major cracks. Our detector was on the lower level, which wasn't being heated because the damper there was closed. When we opened it, the alarm went on and stayed on for two weeks, until we got the heater fixed.

Please be sure to install detectors and have your furnace checked annually.
Dawn Carroll, Norcross, Ga.

The success of this section depends on you. If you have One-to-One tips to share, please send them to the Chronicle at PO Box 220398, Charlotte, NC 28222-0398, or send an e-mail to chronicle@cfids.org.


Anesthetics and CFIDS
People with CFIDS should take extra care when preparing for surgical procedures that will require anesthesia. Here are some tips from Dr. Anne MacIntyre, author of ME: How to Live It (Thorsons, 1989):

  • Tell your doctor and anesthetist that you have CFIDS before surgery. Describe problems you may have with muscle coordination and brain symptoms. This can help the doctor choose the right anesthesia and optimum dose.
  • If you need a local anesthetic, ask for one that does not include adrenaline.
  • Discuss with your doctor whether it would be wise to take extra vitamin A and C, and zinc, for a few weeks after the surgery.
  • Postpone elective surgery if you are severely ill or having a relapse of CFIDS symptoms.