RETURN TO TABLE OF
One to One
Tips, strategies and helpful thoughts about
Sleeping under a "tent"
experience such severe knee and foot pain that even light bedcovers hurt when I
try to sleep. To address this, I purchased a lightweight metal frame that holds
the bedcovers in a "tent" above my feet at night. I also use a "fat" light
switch adapter that fits over my tiny lamp switch to reduce my hand pain. These
and many other items can be purchased though mail order catalogs. Two such
catalogs are Functional Solutions (1-800-235-7054) and Aids for
Arthritis and Fibromyalgia (1-800-654-0707).
Rebecca Becker-Bean, New Jersey
When I travel to certain locations, I am
suddenly virtually cured of my CFS. Even when I stay in these "good" places for
months, I do not revert to feeling badly. I have rated how well I feel in
various places that I have visited, from 0 to 10 (0 is unbearable and 10 is
9: Cuba; coast of northern Peru (avoid in September and
8: The Yucatan, Mexico (avoid in September and
4: Mexicali, Baja California
3: Winnipeg; San Diego; Houston; Florida; Quito,
Ecuador; Mexico City; San Jose, Costa Rica
2: Toronto; New
hoping to hear about others who have had similar improvements and where they
have gone. You can send me your ratings via e-mail at
Paul Beith, Toronto, Canada
Watch for carbon monoxide
winter approaches, many people will be turning on their heaters for the first
time in months. I want to warn everyone about the need for carbon monoxide
detectors on each floor of their homes. This is especially important for people
with CFIDS, since the symptoms of carbon monoxide poison-ing and CFIDS
I began feeling
progressively worse early last winter, and figured that I was having a bad CFIDS
flare-up. In fact, the upper two floors of our house were being flooded with
carbon monoxide because our heater had developed major cracks. Our detector was
on the lower level, which wasn't being heated because the damper there was
closed. When we opened it, the alarm went on and stayed on for two weeks, until
we got the heater fixed.
Please be sure to install detectors and have
your furnace checked annually.
Dawn Carroll, Norcross,
The success of
this section depends on you. If you have One-to-One tips to share, please send
them to the Chronicle at PO Box 220398, Charlotte, NC 28222-0398, or send an
People with CFIDS should
take extra care when preparing for surgical procedures that will require
anesthesia. Here are some tips from Dr. Anne MacIntyre, author of ME: How to
Live It (Thorsons, 1989):
Tell your doctor and anesthetist that you have CFIDS before surgery.
Describe problems you may have with muscle coordination and brain symptoms.
This can help the doctor choose the right anesthesia and optimum
If you need a local anesthetic, ask for one that does not include
Discuss with your doctor whether it would be wise to take extra vitamin A
and C, and zinc, for a few weeks after the surgery.
Postpone elective surgery if you are severely ill or having a relapse of