RETURN TO TABLE OF
One to One
strategies and helpful thoughts about CFIDS
help win disability claim
When applying for Social Security
Disability Insurance (SSDI), records from my dental hygiene clinic turned out to
be a great source of medical documentation.
For 18 years, I had gone in once, sometimes
twice, a year to have dental cleanings. The clinic was run by a university, and
the students there were trained to keep comprehensive health histories of the
patients. A worker at the clinic copied my complete file and a student even
dropped them off at my house. Page after page documented my unusual and extreme
fatigue going back to the early 1980s. These records actually provided far more
detail about my fatigue than my doctors’ records.
A PWC in Ogden, Utah
Try a cold splash for added
I find totally cold showers to be excellent for both waking
me up in the morning and for dealing with my body aches. When I have sore limbs,
I spray them with cold water until they ache from the cold. The ache disappears
immediately after the shower — and the pain is usually gone, too. I swear by
cold showers and have them every single day.
Fergal Hayes, Ireland
Parasite test found intestinal
For years I suspected that a parasite might be contributing to
my intermittent diarrhea and irritable bowel. But repeated and extensive
parasite tests failed to detect anything. Finally, a highly sensitive saliva
test for antibodies to the common amoebic parasite Entamoeba histolytica found
an infection. A three-week treatment program with two antibiotics wiped out the
parasites. The lab that does the test is Diagnos-Techs Lab
Waterhouse, Pasadena, Calif.
Fight off fatigue with
I believe that daily scheduled rests, taken no
matter how good I feel, have been perhaps the single most helpful tool in my
recovery. I have been amazed at what a difference short morning and afternoon
rests have made to stabilizing my life, increasing my stamina and reducing my
Resting everyday according to a fixed
schedule, not just when I feel sick or tired, has been an important part of a
shift from living in response to symptoms to living a planned life. Before I
discovered scheduled rest, I often experienced the cycle of push and crash,
swinging from too much activity to periods of rest and back.
After experimenting, I decided that
meant lying down with my eyes closed in a quiet place (without television or the
telephone). If you decide to try preemptive rests, you may discover that your
mind is pre-occupied with worries. Lying down may not feel restful if your mind
is full of anxiety. A solution is to use a relaxation technique or meditation
practice during your rest.
Most people who try preemptive rests
one or two rest breaks a day of 15 minutes to half an hour. You may want to
experiment to see what works best in your unique situation.
Bruce Campbell, PhD, Palo Alto, Calif.