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Activities and opportunities from The CFIDS
Association of America
donation biggest in Association history
CFIDS Association of America has received an
estate gift of more than $300,000 - the largest single donation of any kind in
the organization's history.
The gift was made by
Elena DeTimofeev of San Francisco. Ms. DeTimofeev, a person with CFIDS, died
early last year. In her will, she specified that all proceeds from her estate,
after taxes, expenses and bequests to family members, be given to the
Association. The Association received the funds in March of this year.
The donor requested
that the funds be used where most needed.
"The Association is
grateful for this tremendous gift," said Jamie Davis, director of development
and chief operating officer. "It will add strength to vital programs and touch
the lives of people with CFIDS for years to come."
Davis said bequests
give donors a chance to make a difference in the fight to conquer CFIDS. "The
essence of planned giving isn't about tax benefits, important as they may be,
but about people and their desire to shape the future of a cause they care
about," she said.
Web site, www.cfids.org,
continues to expand its offerings to members, medical professionals and the
general public. The latest additions include:
- Conferences and meetings. Patient conferences
CFIDS and related disorders, medical meetings and other events are now listed
under the "Resources" tab on the home page. The meetings are listed by state,
and are updated regularly.
- Research and trials. The Association will
more than $276,000 in new CFIDS studies in 2002. Details and updates are
available by clicking on the "About CFIDS" tab. This section also includes
information about diagnosis, treatment and symptoms of CFIDS.
- Continuing education for providers. Doctors
other health care providers can gain continuing education (CE) credits by
studying a new CFIDS-based curriculum (see below).
self-study manual available
The Association's provider education
program, which has already reached hundreds of medical professionals with
information about diagnosing and treating CFIDS, has become even more accessible
with the addition of a self-study manual. The print manual gives a basic
overview of the illness, case study reviews, a bibliography and medical
articles. Medical professionals can earn continuing education credits by
completing the CFIDS self-study program and a brief test. Providers who would
like to order a copy of the manual can contact the Association's Resource Line
at 704-365-2343 or e-mail firstname.lastname@example.org. More information is available online
Davis, a valuable member of the Association's staff since 1995, has been
promoted to chief operating officer. She will continue to lead the Association's
development efforts, and will share responsibility for shaping Association
programs and activities with President & CEO Kim Kenney. "Jamie has
demonstrated her commitment to the Association's mission and has used her
diverse talents in managing numerous key initiatives over the past seven years,"
Kenney said. "The entire organization is made stronger by having her in a more
global leadership role."