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Activities and opportunities from The CFIDS Association
awards contract for provider education
In 1997 the Association
received its first federal grant to explore ways to educate medical providers
about CFIDS. This $18,000 enabled the development of a strategic plan and the
recruitment of partners through the nationís Area Health Education Centers. Work
continued over the next five years to create curriculum materials and train
primary care providers to educate their peers about CFIDS.
On September 26, the
Association was awarded a sizable contract by the Centers for Disease Control
and Prevention (CDC) to continue and significantly expand provider education
activities. Work will begin immediately to recruit additional trainers, promote
print, video and on-line versions of a training course on CFIDS and exhibit and
sponsor events at national provider conferences.
The goal of this
targeted effort will be to improve providersí abilities to detect, diagnose and
manage CFIDS. Physicians, physician assistants and nurse practitioners, form the
target audience for the first year. In future years, activities will be extended
to medical specialists and mental health professionals.
Watch coming issues of the Chronicle
for program highlights
notes staffing changes
wishes to recognize the contributions of four staff members
who left the Association this summer. For four years, Steve Argo has served as
controller, ensuring accurate and timely reports on the Associationís financial
status, and managing the annual audit of records and internal controls. During
her three years on staff, Renťe M. Brehio, director of communications, launched
two new publications, The CFS Research Review and Snapshots of
CFIDS, and updated the look and composition of The CFIDS Chronicle.
She also attracted considerable media attention to CFIDS, including a prominent
full-page article in USA Today and stories by CNN, Good Morning
America, American Medical News and dozens of other print and
broadcast outlets. Resource Line Consultant Melissa Boling helped thousands of
callers, answering questions about diagnosis, treatment, CFIDS community events
and membership. She and Joan Ledford provided valuable administrative help as
well, keeping pace with the high volume of mail and requests that flood the
Association each week. Melissa and Joan served on the Associationís staff for
two years. All will be missed.
Congratulations to two
staff members whose performance has merited promotion into new positions.
Kristina P. Hopkins, the most senior Association staffer with 12 years service,
is now controller. Her unique insight into programs and operations is an
invaluable asset as we continuously strive to be conscientious stewards of funds
entrusted to us by donors, members and granting institutions. Leah Moseley, who
has worked closely with Renee Brehio for the last year, has been promoted to
public relations coordinator. She continues working with media professionals and
staff to raise awareness and generate responsible coverage of CFIDS. Leah also
assists with Association publications and the Web site.
CAA joins pain
The CFIDS Association
America has united with 44 other national groups in a new consortium that will
address the problems caused by chronic pain. The Partnership for Understanding
Pain will work with health care professionals, the business community,
legislator, people with pain and the general public to raise awareness about
groups include the American Cancer Society, the National Fibromyalgia
Partnership, the Arthritis Foundation and the American Chronic Pain