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Tips, strategies, ideas and helpful
thoughts about CFIDS
Cook slow, save your juice
Itís very easy to use a slow cooker or crock pot. You can make
one-dish meals that donít require a lot of your energy for preparation or
cleanup. The food comes out hot and delicious, and you can save the leftovers
for another day.
Many cookbooks offer recipes for crock pots. You can also find
some good ones online. Try this Web site:
If youíre having a really low-energy day, you can make a quick
vegetable soup in your microwave. Combine one envelope of onion soup mix, one
can of mixed vegetables and water. Pop it in the microwave for two minutes or so
and youíre set.
A reader in Louisiana
Tape your visit
I have found that taking a tape recorder to the doctorís
office can be very beneficial. Because of brain fog, I am not always able to
remember everything the doctor tells me. If itís on tape, I can always play it
back later to remember his advice and instructions.
It can also help document your case history. I have found that
sometimes the symptoms I describe to the doctor are not always recorded
accurately in your medical records. Keeping a tape of what you say can help if
there are disputes later with insurance companies.
A reader in Michigan
Iíve had CFIDS for 10 years. When I feel mentally overloaded,
my solution is earplugs, earplugs, earplugs. They are a quick helper to block
out noise and other distractions.
Kenji Oshima, California
Disability Web site
The DisabledPerson.com Web site offers a variety of
information to people with CFIDS and other disabling conditions. The site
includes feature stories, health tips, disability news, resources, online chat
rooms and other information. The Web address is http://
Beware of look-alike illnesses
For a year and a half, I thought I was having a severe CFIDS
relapse. Last January I slept the month away. Finally, I caught on that I might
be sick ó with more than CFIDS.
I went to the doctor for some tests. The results showed a
couple of unusual things, such as liver enzyme levels that were too high. At the
same time, a good friend bought me a glucometer so I could check my blood sugar.
I was in for the shock of my life! My levels were very high.
Terrified, I went back to the doctor, who did not like the
glucometer readings Iíd taken. He confirmed my fear: I had diabetes.
CFIDS had blinded me to the diagnosis. For months I thought,
ďThis increased fatigue is just another CFIDS surprise.Ē But think of how much
we must rest; for some of us that means weight gain, a predisposing factor for
diabetes. Too often, due to post-exertional malaise, weíre unable to exercise as
diabetes prevention. Itís a set-up!
I was in danger of a diabetes-induced coma but I explained it
away as a CFIDS relapse. Increased fatigue and poor vision for months and
months; those are CFIDS symptoms, arenít they?
Yes, these may be CFIDS symptoms. But they may the signs of
another illness masquerading as a CFIDS relapse. Make sure you are checked
annually for look-alike illnesses such as diabetes. Having CFIDS can be hard
enough, but adding to the struggle is terrible.
Thanks to my friend with the glucometer, I now have a list of
CFIDS-doable meals. Fresh vegetables are doing wonders for my sugar level and my
weight. Iím down a size already!