In this Issue
Winter
2003
The CFIDS Chronicle
The Chronicle
is mailed quarterly to members of The
CFIDS Association of America. For information on how to join the
Association,
click
here.
Features
Chronicle Q&A: CDC Shifting to
Clinical Studies
Association Awards Research
Grants
A Fond Farewell: Long-time Association Staffer Says
Good-bye
By Vicki Walker
Smallpox
Vaccine: Recommended for
PWC's?
By Vicki Walker
Snapshots of CFIDS
Poem
By
Kerry Ryan-Kuhn
Gifts From
Above
By Annabel Hobbs
Felicia
Morris
Couple struggles with "disease
of lost dreams"
Kansas
Girl Brushes Off CFIDS,
Contributes To Cause
Provider
Education Update
By
Terri Lupton
Complementary Therapies:
Neurotherapy
By Mark
Giulucci
Interest
Areas
Living With
CFIDS
Sleep and CFIDS -
Sound Advice for Snoozing
By Sharon C. Clem
Lobby Day Rescheduled for
Autumn
Departments
Reader's
Forum
CFIDS News
Association
News
DC Dispatch
Research
News
Media
Watch
One to
One
Book Reviews
Message to members
Sign of the Times
It never ceases to amaze me just how
quickly technology changes our lives. More and more of us get our daily dose of
news through the Internet; cell phones retrieve stock quotes in real time; and
business communication is no longer confined to “office hours.”
We rely — and thrive — on technology.
As
such, our definition of responsiveness is changing. As a society, we’re no
longer willing to wait for the information we need.
That simple truth has drastically changed
the role and value of the Association’s print publications. For years, we’ve
published two printed quarterlies, The CFIDS Chronicle
and The CFS
Research Review. Both have undergone design, content and style changes and
have become valued member benefits.
Yet technology keeps accelerating the
spread of information — often to the point that printing presses (and people)
have trouble keeping pace. We’re subjected to more news and “noise” than ever.
And, at times, it can be difficult to discern the accuracy, merit and meaning of
all that we read and hear.
So we have decided to alter our information
“mix” with consideration for the Association’s members and supporters. First, in
2003, The CFS Research Review will move from a quarterly to a semi-annual
publication. Although its frequency will decrease, the page count per issue will
increase from 12 to 16. The larger format will enable us to offer more in-depth
articles on research and treatment issues. The Chronicle will maintain
its quarterly schedule.
At the same time, we’re looking at
new ways
to harness the speed and cost-effectiveness of the Internet to reach you, and
thousands of others, faster and more often.
In addition to the stores of information
on Web
site, http://www.cfids.org/, we’ve recently launched a
new electronic news-letter, CFIDS
Link. This plain-text email, filled with research, media and public policy
updates, will be delivered to your desktop monthly. If there’s breaking news or
a special call to action, CFIDS
Link enables us to reach you in minutes.
We know you’re hungry for the most
up-to-date, credible information about
CFIDS.
We believe that these improvements will enable us to get you more of the
reliable news you need, faster.
The times and technology will continue
to
change. Be assured that the Association’s commitment to conquering
CFIDS — and to aid those who suffer from it —
will not.
Jamie L. Davis
Chief
Operating Officer
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