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Spring 2003 

Association News
Activities and opportunities from The CFIDS Association of America


Feature on symposia released
In late February, The CFIDS Association released a camera-ready article to local newspapers across the United States through the North American Precis Syndicate (NAPS). The article, which is the second in a series of three, is based on three research symposia held in 2000 and 2001 sponsored by the Association. The article highlights conclusions reached by attending researchers and scientists from each symposium on problems that play a role in CFIDS, including neurological abnormalities, hormone imbalance and the body’s reduced ability to resist infections.

The first camera-ready print article, released in 2001, has generated coverage in more than 268 newspapers in 22 different states with a readership of more than 29 million.

So far, the symposia article has been featured in newspapers in nine states with a combined readership of more than 129,000.


Web site wins prestigious privacy seal
The Association has added a new privacy protection seal on www.cfids.org. By participating in the Council of Better Business Bureau’s BBBOnline Privacy Program, the Association has made a commitment to meet the program’s strict requirements regarding how we treat the information you provide us when you visit our Web site.

The BBBOnline privacy seal, awarded to just 700 Web sites, allows you to feel comfortable and secure about visiting and sharing information. The privacy seal ensures that any information you provide while visiting our Web site is kept private. The Association is the only organization with access to the information you provide; we do not sell, share or rent this information to others under any circumstances.

If you would like to view our privacy policy online, please visit http://www.cfids.org/privacy-policy.asp

“HealthWatch” mails with CFIDS Chronicle
The Association is pleased to share a special edition of Pro Health’s newsletter, “HealthWatch,” with you this month. It contains research briefs as well as treatment and illness management possibilities derived from both traditional and complementary medicine. (Pro Health has covered the additional costs associated with this mailing.)

The CFIDS Association has long advocated that people with CFIDS make informed choices about their medical care. We hope this newsletter will serve as yet another resource for our members. 

Pro Health shares the Association’s commitment to advancing CFIDS science. To help make more ground-breaking research possible, Pro Health will match contributions, dollar for dollar, made to the Association’s research program this spring. Please consider making a special gift to help accelerate the progress of CFIDS research.


CFIDS
Link…the latest e-communication
CFIDS Link is the latest e-communication offering from The CFIDS Association of America. Delivered to your computer the first Monday of every month, it keeps you informed and in the loop by highlighting the latest information on CFIDS education efforts, research studies, public policy updates and Association news.

Recently CFIDS Link added a new feature: Spotlight on CFS. In each edition, Spotlight on CFS will feature a prominent scientist, CFIDS advocate, Association board member or supporter. In April the Association focused the spotlight on CFIDS activist Brooke Herrin. Visit www.cfids.org/about/brooke.asp to read how Brooke turned to advocacy to fight back at CFIDS.