TO TABLE OF CONTENTS
Your guide to
The Marsh and I
don’t make the
that wait for us out nigh.
We’ll live them as
and birds, they fill the sky.
—C. Eric Hellmann
C. Eric Hellmann has spent much of the past 32 years paddling
the waters of central Ohio. An avid outdoorsman, he
loves nothing more than a quiet day on the marsh.
Since developing CFIDS,
however, Hellmann sometimes finds it difficult to escape outdoors. So he has
turned to poetry as a way to restore the peace and sense of harmony that the
lakes and ponds once provided.
The result is Among the Reeds, a collection of his
favorite writings. Hellmann’s anthology is one of a growing number of books
written by and for people with CFIDS (PWCs).
The rise of self-publishing houses has made it easier for PWCs
to get their work in print. But, as a consequence, it’s a little harder for
others to find them, since they’re not always available in book stores on even
at online sellers.
To help make these books more accessible, The
CFIDS Association of America has begun listing
PWC-written books (and others written by health care professionals) on its Web
site, www.cfids.org, along with buying information. Check the What’s New
page for the listings.
Hellmann’s book is available for $14.95 through iUniverse.com,
an online book seller. For more information, check www.iuniverse.com.
Here are couple other books written by
Making the Best of Orders to Rest
2002, WinePress Publishing
$12.95, 181 pp.
This is a delightful collection of essays from a PWC in
Florida. She recounts her daily
struggles with an infectious sense of optimism that is strengthened by her faith
— but also with an occasional poignant piece about how the illness has changed
her life forever.
“Can I embrace my suffering instead of being afraid of it and
thereby focus on the more important things?” she asks. “If I wait until I am
‘fixed,’ I may never change.”
Ten Myths about Doctors and What You Can Do to Dispel
By Kay Hutchinson
$15.00, 84 pp.
“I…write this book so that whoever reads it will know that
there are indeed GOOD doctors in this world and that you should NEVER stop
looking for them,” author Kay Benton writes in the introduction to her book. She
then discusses her Top 10 misconceptions about doctors and ways to get the most
from your relationship with every health care professional.
Far from a simple rant against the medical profession,
Benton lists a number of resources,
your personal “Bill of Rights” and other tips for improving your treatment.
Benton’s book is available online
through Amazon.com, or at
Tragically, Kay Benton died earlier this year after an
unexpected illness. She was an occasional contributor to The
CFIDS Chronicle, and her hard
work and fighting spirit will be missed.
Giuliucci is editor for The
CFIDS Association of