TO TABLE OF CONTENTS
A report on
coverage of CFIDS in the mainstream media
Association letter to the editor.
The January 2003
issue of SELF magazine featured an article, “It’s chic to be sick,” that may
discourage women from mentioning possible CFIDS
symptoms to their physician by implying that tiredness and/or depression is due
to lack of motivation. The CFIDS Association
sent a letter to the editor of SELF stating that
CFIDS is often misdiagnosed and that the
author’s suggestion that “the newest crop of diseases is only socially
contagious” may perpetuate this myth and interfere with getting a proper
On Feb. 1, CBSNews.com featured
a story on a study of the experimental drug Ampligen as a treatment for
CFIDS. The article reports on how person with
CFIDS (PWC) Joan Friedman has benefited from
the Ampligen trials, includes quotes from CFIDS
specialist Dr. Richard Podell and provides
general information about the illness.
The March 11 issue of the
St. Louis Post-Dispatch featured an article by Dr. Hank Clever that
reveals a physician’s perspective on how CFIDS
is still a poorly understood and hidden illness. In October 2002, the St.
Louis Post-Dispatch also featured an article on
CFIDS that highlighted 24-year-old PWC Doug
Lindsay and his invitation to present his proposed treatment for some people
with CFIDS and orthostatic intolerance at an
inter-national symposium on the autonomic nervous system.
Ebony magazine published a
CFIDS article in its March 2003 issue. The
article gives a comprehensive overview of the illness, lists symptoms and
highlights the seriousness and debilitating nature of
CFIDS. Ebony reaches more than 10 million
readers each month.
The Apr. 10 edition of
The Columbus Dispatch featured an article on a PWCs and the battle over
long-term disability benefits. The CFIDS
Association worked with the author, Phil
Porter, providing CFIDS
disability information and arranging an interview with a local PWC and
disability advocate, Kelly West, who is also mentioned in the article.
Lupton, The CFIDS
Association’s coordinator for educational opportunities, wrote an article on the
nursing implications of CFIDS that ran in the
December 2002 issue of Nursing Spectrum. The article addresses the
importance of provider-patient partnership and the need for informed and
compassionate nursing care.
Blood circulation and
WebMD, a leading
provider of online information, educational services and communities for
physicians and consumers, published an article on April 15 that highlights new
findings that blood circulation problems may be an underlying cause of
CFIDS. The article is based on research
reported at a medical conference by Arnold Peckerman, MD, of the VA Medical
Center in East Orange,
HPA axis study. A study published in the Nov/Dec.
2002 issue of Psychosomatic Medicine has sparked extensive media
coverage, including The New York Post, HealthScoutNews and BBC
News. The coverage highlights research that indicates subtle changes in the
hormonal stress response system (HPA axis) may play a role in
Thanks go out to those who are working with the media
to increase awareness of CFIDS.
The CFIDS Public Relations (CPR)
Team helps monitor and respond to media coverage. Please clip articles about
CFIDS and send them to CPR Team,