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Activities and opportunities from TheCFIDS
Annual report available
Last year was arguably the
most difficult in a decade for The
Association of America. At a time when the organization found itself stronger
and more capable than ever to advance its mission of conquering
CFIDS, the weakened economy and national
uncertainty hit the Association hard. Across the charitable sector, donors
reflected the mood; they made smaller gifts and sometimes postponed planned
gifts and annual contributions.
We are grateful, however, that many of our supporters
continued to make the Association one of their top philanthropic priorities.
As you review the pages of the 2002 Annual Report, we hope you
will share our enthusiasm about what we accomplished in a year when we were
tested to do more with less. We will move forward buoyed by the potential we
have to bring remarkable progress to people with
CFIDS. For a copy call 704-365-2343 or read it
Web site has new look
On June 30th the
Association launched its newly redesigned Web site. The revised site has added a
special section for medical professionals as well as a new community area for
patients seeking support and other resources. Please visit
www.cfids.org and send your comments to
“Seabiscuit” hats and shirts available
and purchase a “Seabiscuit” hat or sweatshirt to commemorate the release of the
movie. A portion of the purchase price of each item sold will go to the
Association to help support our efforts in
CFIDS education, public policy and research.
The Association would like to extend special thanks to HorseHats owner, Dave
Williams, for his generosity and interest in
CAA joins Congress on Women’s Health
Association joined the 11th Annual Congress on Women’s Health as a collaborating
organization. The Congress, presented by the Journal of Women’s Health
and held May 31–June 3 in Hilton Head, S.C., allowed the Association an
opportunity to introduce itself as a source of timely and pertinent information
CFIDS to a national audience of physicians,
nurses and leaders in the field of women’s health.
Other collaborating organizations included the Arthritis
Foundation, The Lupus Foundation of America and the National Women’s
Meetings on the Hill
On May 13–14,
Leah Moseley, public relations coordinator for
the Association, and
Mary Beth Buchholz of The
Sheridan Group met in Washington with freshman members of Congress and key
appropriators of the House Appropriations Subcommittee on Labor, Health and
Human Services, Education and Related Agencies. A total of
10 meetings were held to discuss
CFIDS and federal agency response from the
National Institutes of Health, the Centers for Disease Control and Prevention
and the Department of Health and Human Services.
Offices visited included Senator John Ensign, R-Nev.; Rep.
Kendrick Meek, D-Fla.; Rep. Ernest Istook, R-Okla.; Sen. Elizabeth Dole, R-N.C.;
and Rep. Bill Young, R-Fla..
On September 17-18, CFIDS
advocates from across the country will unite to meet with representatives on the
Hill to again discuss CFIDS and how the illness
has impacted their lives. There’s still time to join us for Lobby Day. For more
information, visit the Association Web site at
or call the Association’s Resource Line at 704-365-2343.