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RETURN
TO TABLE OF CONTENTS Summer 2003
CFIDS News Keeping
you up to date on recent events across the nation and around the world
Dr. John Stewart The
CFIDS community lost a compassionate ally this
summer when Dr. John Stewart died after a fall at his home.
Dr. Stewart worked at the U.S. Centers for Disease Control and
Prevention (CDC) for more than 40 years. For half his tenure, he served as Chief
of the Virology Section, Viral Exanthems and Herpes-virus Branch, Division of
Viral and Rickettsial Diseases at the CDC’s
National
Center for Infectious Diseases
(NCID). In this capacity, he helped lead study of the causes, impact and
treatment of numerous diseases — including Epstein-Barr virus and
CFIDS .
Dr. Stewart was a friend of The
CFIDS Association of America.
Terri
Lupton, the Association’s coordinator for
educational opportunities, remembers him as a “determined advocate” whose
open-minded approach to studying
CFIDS led to
greater understanding of the illness. His dedication and kindness will be
missed.
NIH conference on
CFIDS
On June 12–13, a hundred
researchers and program staff gathered for a National Institutes of Health (NIH)
conference on NeuroImmune Mechanisms and CFS. The meeting, supported by the NIH
Office of Research on Women’s Health and the
Trans-NIH Working Group for Research on CFS, brought together
senior investigators from areas with relevance to CFS and CFS experts. The
agenda was designed to shed light on promising avenues of research, based on
progress in other disciplines.
Dr. Vivian Pinn, director of the Office of Research on Women’s
Health, announced that NIH would use the meeting to craft a Request for
Applications (RFA) for CFS research, a high visibility solicitation due to the
availability of designated funds for successful applications. NIH will issue a
meeting summary, followed by full proceedings late this year. The RFA will be a
joint effort of several NIH institutes and will take several months to draft,
revise and approve.
Disability workshop The Interagency Commit-tee
on Disability Research (ICDR) held a stakeholders meeting on June 26 in
Washington ,
D.C.
to gather input on future federally
funded disability research.
Kim
Kenney
represented The
CFIDS Association at this
session, as one of 40 invited participants from a wide range of disability
organizations.
Discussion focused on the use of assistive technologies to
enhance disabled persons’ abilities to engage in employment, education, health
care and their communities. Assistive technology is defined as anything that
improves function, from eyeglasses to specially equipped laptop computers to
lightweight collapsible wheelchairs.
The mission of the ICDR is to promote coordination and
cooperation among federal departments and agencies conducting rehabilitation
research programs.
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