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and opportunities for people with CFIDS (PWCs)
Bulletin Board space is provided at no cost to individuals
or groups who conduct nonprofit or volunteer activities for the CFIDS
The CFIDS Association of America assumes no responsibility
for content. Send notices to The CFIDS Chronicle at firstname.lastname@example.org or mail
to PO Box 220398, Charlotte, NC 28222-0398.
and/or physicians who have found a suitable replacement for the recently
withdrawn medication Kutapressin are asked to e-mail their information to
email@example.com. Data on acceptable substitutes will be shared with members
of the Co-Cure online listserv. To join Co-Cure, go to
Author Donna Delaney is looking for contributors who are able
to fight CFIDS with occasional humor and laughter. If you think chocolate is a
health food because it grows on a green plant, send in your anecdotes. Only the
positive should apply! Send e-mail to firstname.lastname@example.org, or write to 230
Spencer Land-ing West, LaPorte, TX 77571.
Contributions requested for a new book describing what CFIDS
actually feels like through the words and pictures of sufferers. All prose,
photos and artwork considered. For guidelines and submission form see
send a note and self-addressed reply envelope (with international postage) to:
CFS Contributions, 18 Bishops Way, Buckden, Hunt-ington, Cambs, PE195TZ, UK.
A free online mailing list is
available to PWCs who want to explore alternative treatments, energy work and
the effects of positive thinking on healing. Sign up at:
The Encourager is a small inspirational newsletter
for chronically ill Christians. It is published on a bi-monthly basis, with a
suggested donation of $6 for seven issues.
For more information, contacts Renee Dahlen at 1032 15th St.
NE, Mason City, IA 50421, or write to
Participants are needed for a CFIDS research project funded by
the National Institutes of Health. The project is being conducted at the State
University of New York at Stony Brook and involves the study of daily patterns
of activity, energy, fatigue and stress in people with CFIDS. A two-year
follow-up assessment also will be done. Participants will be paid and the
medical evaluation is free of charge. One visit to Stony Brook Hospital is
required. For more information, contact Fred.Friedberg@stonybrook.edu or call
Study participants are needed for a clinical trial of the drug
Procrit. Anyone who can travel to Miami twice each month is invited to
participate. For more information, write to
For more information on clinical trials open to CFIDS
patients, see the Associationís Web site,
For the latest nationwide listing of patient conferences,
please visit the Associationís Web site at
www.cfids.org and click on the Whatís New icon.