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Fall 2003 

Bulletin Board
Information, resources and opportunities for people with CFIDS (PWCs)

Bulletin Board space is provided at no cost to individuals or groups who conduct nonprofit or volunteer activities for the CFIDS community.

The CFIDS Association of America assumes no responsibility for content. Send notices to The CFIDS Chronicle at chronicle@cfids.org or mail to PO Box 220398, Charlotte, NC 28222-0398.

INFORMATION NEEDED
Patients and/or physicians who have found a suitable replacement for the recently withdrawn medication Kutapressin are asked to e-mail their information to capt_h2o@yahoo.com. Data on acceptable substitutes will be shared with members of the Co-Cure online listserv. To join Co-Cure, go to http://www.co-cure.org/sub.htm.

Author Donna Delaney is looking for contributors who are able to fight CFIDS with occasional humor and laughter. If you think chocolate is a health food because it grows on a green plant, send in your anecdotes. Only the positive should apply! Send e-mail to donna_delaney@hotmail.com, or write to 230 Spencer Land-ing West, LaPorte, TX 77571.

Contributions requested for a new book describing what CFIDS actually feels like through the words and pictures of sufferers. All prose, photos and artwork considered. For guidelines and submission form see www.geocities.com/mecfsbook, or send a note and self-addressed reply envelope (with international postage) to: CFS Contributions, 18 Bishops Way, Buckden, Hunt-ington, Cambs, PE195TZ, UK.

RESOURCES
A free online mailing list is available to PWCs who want to explore alternative treatments, energy work and the effects of positive thinking on healing. Sign up at: http://groups.yahoo.com/group/CFSPositiveEnergy/.

The Encourager is a small inspirational newsletter for chronically ill Christians. It is published on a bi-monthly basis, with a suggested donation of $6 for seven issues.

For more information, contacts Renee Dahlen at 1032 15th St. NE, Mason City, IA 50421, or write to reneejoel@netconx.net.

RESEARCH/TRIALS

Participants are needed for a CFIDS research project funded by the National Institutes of Health. The project is being conducted at the State University of New York at Stony Brook and involves the study of daily patterns of activity, energy, fatigue and stress in people with CFIDS. A two-year follow-up assessment also will be done. Participants will be paid and the medical evaluation is free of charge. One visit to Stony Brook Hospital is required. For more information, contact Fred.Friedberg@stonybrook.edu or call 631-632-8252.

Study participants are needed for a clinical trial of the drug Procrit. Anyone who can travel to Miami twice each month is invited to participate. For more information, write to CFSresearch@miami.edu.

For more information on clinical trials open to CFIDS patients, see the Association’s Web site, http://www.cfids.org/about-cfids/clinical-trials.asp.

For the latest nationwide listing of patient conferences, please visit the Association’s Web site at www.cfids.org and click on the What’s New icon.