TO TABLE OF CONTENTS
One To One
Tips, strategies, ideas and
helpful thoughts about CFIDS
Shopping with sunglasses
Hereís a tip
for those who are able to go shopping but still find it extremely draining. When
I go to the mall, Wal-Mart or any other large store I wear my sunglasses and
only take them off when Iím looking at the specific item I want to buy.
I find this cuts down on the "sensory overload" that makes our
fatigue so much worse. Shopping isnít nearly as much fun as it was pre-CFIDS,
but this enables me to do at least some.
Mary Ann Tricsko Sotero
Supplements for IBS
I have irritable
bowel syndrome (IBS) in addition to CFIDS. I have found relief by using
supplements and changing my dietary habits. I maintain a gluten-free diet and
ingest a high-potency "good bacteria" supplement. I also avoid processed foods
and white sugar whenever possible. In addition, I consume a number of "power
foods" including Spirulina (a high-protein algae), Noni juice (a medicinal
tropical fruit), high-quality whey protein, flax seeds and plenty of fresh
fruits and vegetables.
I also use some licorice root in my tea to help keep my blood
pressure up. I season my food with oils such as olive, coconut, flax, hemp,
etc., and avoid hydrogenated fats.
Char Tara Albert
High-salt for OI
I have orthostatic
intolerance (OI), which causes lightheadedness and many other problems. I have
found that a high-salt diet helps improve my symptoms. My doctor tells me that
the extra salt in my system increases the volume of blood ó and that helps my
body regulate my blood pressure better.
You can try salt tablets, but I find it best to eat healthy
high-sodium foods like vegetable juice or even a little pickle juice.
Editorís note: High-salt diets should be discussed with
Have a One to One tip youíd like to share? Send it to the
Chronicle at The CFIDS Association of America, P.O. Box 220398, Charlotte, NC,
28222-0398. You also can send them by e-mail to
Preventing pressure sores
People with severe cases of CFIDS are at increased risk of
developing pressure sores, also known as bed sores. They are painful and can
lead to serious infections ó but with a little prevention, they can usually be
The Tissue Viability Society, based in Great Britain, offers
Pressure sores can be caused by sitting in one position for
a long time. If you can get up briefly, even for a few minutes an hour, do so.
If you must remain in bed, change positions every one or two hours. You can
use pillows to redistribute your weight away from bony areas like your hips.
If youíre sitting in a chair, try to rock from one buttock to the other for
short periods of time.
When youíre moving in bed or a chair, try not to drag your
skin across the fabric. You also can try special tools, such as a
pressure-relieving mattress, mattress overlay or cushions designed to
distribute your weight more evenly. Changing bed sheets on a regular basis is
highly recommended, especially if you are sweaty.
Make sure you drink plenty of water to keep your body
hydrated and at lower risk for sores. If you notice that parts of your body
feel numb, or become darkened or reddened (especially if the area stays red
when you press it), you may be developing a sore. Take special care to keep
your weight off the area.
If you think you have a pressure sore, contact your doctor
ó The editor