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In this Issue

• CFIDSLink Bulletin Board
• CFIDSLink Out & About
• Donate Now
• Benefit Events “Scrapbook”
• CFSAC Update
• Don’t Miss Out on a Key Source of Information
• New Social Security Disability Brochure
• Grassroots Action Center
• Neurontin Maker Fined
• The New Yorker magazine honored for CFIDS story
• We need your help!

CFIDSLink Bulletin Board
Visit http://www.cfids.org/cfidslink/june-bb.asp for notices from individuals and organizations about resources and services available for PWCs, as well as requests for information and assistance.

CFIDSLink Out & About
Visit http://www.cfids.org/cfidslink/june-out-n-about.asp for up-to-date news and happenings within the CFIDS community.

Donate Now
The CFIDS Association takes the health people with CFIDS very seriously. As a reader of CFIDS Link, you’ve demonstrated that you care about the 800,000 men, women and children who suffer from chronic fatigue and immune dysfunction syndrome (CFIDS, also known as chronic fatigue syndrome or CFS). So please, support the Association. Your gift funds vital research, expands public awareness and education and drives CFIDS-related public policy. Make your tax-deductible donation now at http://www.cfids.org/ecommerce/donations.asp

Benefit Events “Scrapbook”
Read about recent Association benefit events and view our new online photo gallery at http://www.cfids.org/community/benefit-events.asp

CFSAC Update
The Chronic Fatigue Syndrome Advisory Committee to the U.S. Secretary for Health will meet in Washington, D.C. on Monday, June 21, 2004 to hear reports from various federal health agencies and to formulate recommendations to Secretary Tommy Thompson on matters related to CFS research, education and disability. Additional details will be posted by Department of Health and Human Services staff at http://www.hhs.gov/advcomcfs/index.html

Don’t Miss Out on a Key Source of Information
The CFIDS Chronicle is one of the most highly respected sources of information for the CFIDS community. We have just redesigned the magazine to include more of what our readers and members want. You will find:

––profiles of people with CFIDS whose experiences mirror your own

––advice for dealing with family members, friends and co-workers who are skeptical of the illness

––the latest information on treating the symptoms that most impact your life

––much more

Just send an e-mail to cfidslink@cfids.org to receive a FREE sample copy of the CFIDS Chronicle, and don’t forget to provide your name and mailing address.

New Brochure
To help people with CFIDS make informed decision about the Social Security disability process, the Association offers a free brochure. For your copy and more information, visit http://www.cfids.org/cfidslink/ssd.asp

Grassroots Action Center
Nearly 10,000 letters have been sent through the Association’s new Grassroots Action Center. Read more at http://www.cfids.org/cfidslink/grassroots.asp about the on-line feature that’s generated so much buzz!

Neurontin Maker Fined
Marketing practices for a drug used by some clinicians to treat CFIDS have been the subject of intense scrutiny. View the details of this story at http://www.cfids.org/cfidslink/neurontin.asp

The New Yorker magazine honored for CFIDS story
Laura Hillenbrand adds another prize to her sizable collection. This one may be the most personally meaningful yet. Visit http://www.cfids.org/cfidslink/laura-award.asp for more details.

We need your help!
When you become ill with CFIDS, it can dramatically change the lives of those around you. The CFIDS Association of America is gathering stories on the larger impact of this devastating disease. We’d like to hear from you and those people in your life who are also living with your illness. This includes family members, friends, colleagues and anyone whose life has been seriously affected by your illness. We believe these stories can help the general public understand the full extent of the toll CFIDS takes not just on CFIDS sufferers, but on everyone who cares for them.

Please send your stories to Marcia Harmon at mlharmon@cfids.org.