In this Issue
CFIDSLink Electronic Newsletter
CFIDSLink is e-mailed monthly to all those interested. To sign up for the electronic newsletter http://www.cfids.org/subscribe.asp .
In this Issue
- Senate Appropriators Recognize Research Funding Decline
- Steep decline in NIH funding for CFS research
- CFS Advisory Committee Update
- CDC Hosts Meeting on High-Tech Solutions to CFS Puzzles
- A Personal Story
- Snapshots of CFIDS
- CFIDSLink Bulletin Board
Senate Appropriators Recognize Research Funding Decline
Responding to requests from the CFIDS Association of America, members of the U.S. Senate Appropriations Committee expressed their concerns about NIH funding of CFIDS research. Visit http://www.cfids.org/cfidslink/oct-appropriations-report.asp to read the CFIDS-related language from their September 15 report, part of annual legislation that sets funding levels for government programs.
Steep decline in NIH funding for CFS research
The steep decline in NIH funding for CFS research was the topic of a report delivered to the Department of Health and Human Services CFS Advisory Committee on Monday September 27th, 2004 -- Visit http://www.cfids.org/advocacy/2004/gac_09272004.asp to learn more and see how you can help!
CFS Advisory Committee Update
The Department of Health and Human Services CFS Advisory Committee held its fifth meeting on Monday, September 27, 2004 in Washington, D.C. Visit http://www.cfids.org/cfidslink/oct-cfsac-update.asp to read more on this meeting.
CDC Hosts Meeting on High-Tech Solutions to CFS Puzzles
Researchers, engineers, computer whizzes and rocket scientists gathered for two-and-a-half days at the prestigious Banbury conference center on the campus of Cold Spring Harbor Laboratories. Read more details about this important meeting at http://www.cfids.org/cfidslink/banbury.asp.
A Personal Story
CFIDS doesn’t just affect the life of people who have the illness. It impacts everyone who cares for them. In this brief account one of our readers, Taffy Todd, describes how her illness is jeopardizing a 14-year relationship. Please visit http://www.cfids.org/cfidslink/todd.asp to read Taffy's story, and please consider sending us your own story. We'd like to hear from spouses, children, siblings, friends--everyone whose life is changed in some way by this illness. Send your personal stories to Marcia Harmon at firstname.lastname@example.org.
Snapshots of CFIDS
The CFIDS Association created Snapshots of CFIDS to help educate people about CFIDS by "connecting" them to someone whose life has been derailed by the illness. Visit http://www.cfids.org/cfidslink/snapshots.asp to request your complimentary copy of this important publication.
CFIDSLink Bulletin Board
Visit http://www.cfids.org/community/bulletin-board.asp for notices from individuals and organizations about resources and services available for PWCs, as well as requests for information and assistance.