In this Issue
CFIDSLink is e-mailed monthly to all those interested. To
sign up for the electronic newsletter visit
In this Issue
- CFS Computational Challenge
- Summer CFIDS Chronicle a Hit with Readers
(Get Your Free Copy!)
- Chronic Fatigue Gene Signs Found
- The Wisconsin CFS Association
- Register for kNOw MORE Seminar!
- A Team Approach to Treating CFS
- New Directions in Provider Education
- Living with CFIDS: Personal Stories
- Tell Us Your Secrets for Success
- Regional Conferences and Meetings
- Bulletin Board Notices
CFS Computational Challenge
In March 2005, the CDC's CFS Research Program launched the CFS Computational
Challenge. Conference report available at http://www.cfids.org/cfidslink/2005/camda.asp.
Summer CFIDS Chronicle a Hit with
Chronicle reader Jeannie K. writes, "Let me reiterate
how much I enjoyed this current issue! The article "Mind, Body, Spirit" made my
spirits soar! It's just so exciting to finally read things that so apply to our
every day lives." Learn more about the Chronicle and how to receive
your free copy by visiting http://www.cfids.org/cfidslink/2005/cover-s05.asp right now.
Chronic Fatigue Gene Signs Found
Scientists believe they have pinpointed biological markers of chronic
fatigue syndrome which could help develop a test and treatment for the
To read more about the study see http://news.bbc.co.uk/1/hi/health/4702515.stm.
For information and criteria for
participation in the RNA double-blinded trial with regard to chronic fatigue
syndrome see http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind0509c&L=co-cure&T=0&F=&S=&P=7603.
The Wisconsin CFS Association
One of the oldest and most active state organizations for ME-CFS in the
United States has set about to establish a medical clinic for the diagnosis and
treatment of patients with unexplained neurological and autoimmune disease.
Learn more about this project and other Wisconsin CFS Association projects at http://www.cfids.org/cfidslink/2005/wcfsa.asp.
Register for kNOw MORE
The Association will hold its second "kNOw MORE" CFS Education
and Empowerment Seminar in Charlotte, NC on Sunday, November 13, 2005. Local
CFIDS clinician, Dr. Charles Lapp will serve as guest host with featured
speakers Dr. Nancy Klimas from the University of Miami School of Medicine and
Dr. Peter Rowe of Johns Hopkins.
Tickets for this half-day seminar are
just $15 if purchased before November 7, 2005 and $20 after the deadline and at
the door. To register, please call 704-364-0466 or visit http://www.cfids.org/ecommerce/products.asp?setCategory=6. To
receive a brochure with complete details and registration form, please send an
e-mail to firstname.lastname@example.org with the subject line "KNOW MORE."
A Team Approach to Treating
CFS patients can benefit from the involvement of a team of primary
and allied health care providers in managing the physical, social and
psychological effects of their illness. In the summer 2005 issue of the CFS
Research Review, Patricia Fennell, MSW, LCSW-R and Lucinda Bateman, MD,
discuss a team approach to treatment and matching best medical practices to
phases of illness. Full text is available at http://www.cfids.org/cfidslink/2005/team-approach.pdf.
New Directions in Provider
The CFIDS Association continues its efforts to inform health
care providers about CFS through multiple and diverse methods. Visit http://www.cfids.org/cfidslink/2005/pep.asp to learn more
about recently developed activities.
Living with CFIDS: Personal
Many CFIDSLink readers have been sharing stories of how
CFIDS impacts their lives and the lives of their families. Stories of profound
loss, of anger and acceptance, of a struggle without end. In this month's
column, you’ll meet Catherine Lilbit Devine who was raised "never to quit and to
believe that illness was something you just pushed through. So I didn’t give up.
I adjusted my career expectations, and I adjusted my life."
Visit http://www.cfids.org/cfidslink/2005/devine.asp to read
Catherine's story, then please consider sharing your own. Send your personal
stories to Marcia Harmon at
Tell Us Your Secrets for
The CFIDS Chronicle, print companion to the
CFIDSLink, will be featuring Tips for Daily Life in an upcoming issue.
Who better than to offer tips than our own valued readers? Perhaps there is a
special program that has helped you or your family. Or maybe you’ve found a
unique way to stretch dollars, time or energy. If you have one or more gems that
really help you get along, please share them with the Chronicle’s new editor
Pamela Young at email@example.com.
Regional Conferences and
Visit the Community section of the Association's Web site at http://www.cfids.org/community/conf-meetings-interest.asp for
an up-to-date listing of regional conferences, support group information and
community resources for patients and their family members. Information is
currently available about upcoming conferences to be held in New Jersey, South
Carolina, Florida, Minnesota, North Carolina and California.
Bulletin Board Notices
Visit http://www.cfids.org/community/bulletin-board.asp for
up-to-date news and happenings within the CFIDS community.