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In this Issue
October 2005
CFIDSLink Electronic Newsletter

CFIDSLink is e-mailed monthly to all those interested. To sign up for the electronic newsletter visit  http://www.cfids.org/subscribe.asp.

In this Issue

  • CFS Computational Challenge
  • Summer CFIDS Chronicle a Hit with Readers
    (Get Your Free Copy!)
  • Chronic Fatigue Gene Signs Found
  • The Wisconsin CFS Association
  • Register for kNOw MORE Seminar!
  • A Team Approach to Treating CFS
  • New Directions in Provider Education
  • Living with CFIDS: Personal Stories
  • Tell Us Your Secrets for Success
  • Regional Conferences and Meetings
  • Bulletin Board Notices


CFS Computational Challenge

In March 2005, the CDC's CFS Research Program launched the CFS Computational Challenge. Conference report available at http://www.cfids.org/cfidslink/2005/camda.asp.


Summer CFIDS Chronicle a Hit with Readers

Chronicle reader Jeannie K. writes, "Let me reiterate how much I enjoyed this current issue! The article "Mind, Body, Spirit" made my spirits soar! It's just so exciting to finally read things that so apply to our every day lives." Learn more about the Chronicle and how to receive your free copy by visiting http://www.cfids.org/cfidslink/2005/cover-s05.asp right now.


Chronic Fatigue Gene Signs Found
Scientists believe they have pinpointed biological markers of chronic fatigue syndrome which could help develop a test and treatment for the condition.

To read more about the study see http://news.bbc.co.uk/1/hi/health/4702515.stm.

For information and criteria for participation in the RNA double-blinded trial with regard to chronic fatigue syndrome see http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind0509c&L=co-cure&T=0&F=&S=&P=7603.


The Wisconsin CFS Association

One of the oldest and most active state organizations for ME-CFS in the United States has set about to establish a medical clinic for the diagnosis and treatment of patients with unexplained neurological and autoimmune disease. Learn more about this project and other Wisconsin CFS Association projects at http://www.cfids.org/cfidslink/2005/wcfsa.asp.


Register for kNOw MORE Seminar!

The Association will hold its second "kNOw MORE" CFS Education and Empowerment Seminar in Charlotte, NC on Sunday, November 13, 2005. Local CFIDS clinician, Dr. Charles Lapp will serve as guest host with featured speakers Dr. Nancy Klimas from the University of Miami School of Medicine and Dr. Peter Rowe of Johns Hopkins.

Tickets for this half-day seminar are just $15 if purchased before November 7, 2005 and $20 after the deadline and at the door. To register, please call 704-364-0466 or visit http://www.cfids.org/ecommerce/products.asp?setCategory=6. To receive a brochure with complete details and registration form, please send an e-mail to cfids@cfids.org with the subject line "KNOW MORE."


A Team Approach to Treating CFS

CFS patients can benefit from the involvement of a team of primary and allied health care providers in managing the physical, social and psychological effects of their illness. In the summer 2005 issue of the CFS Research Review, Patricia Fennell, MSW, LCSW-R and Lucinda Bateman, MD, discuss a team approach to treatment and matching best medical practices to phases of illness. Full text is available at http://www.cfids.org/cfidslink/2005/team-approach.pdf. To begin receiving the Research Review (and the CFIDS Chronicle), join the Association by visiting http://www.cfids.org/ecommerce/membership.asp.


New Directions in Provider Education

The CFIDS Association continues its efforts to inform health care providers about CFS through multiple and diverse methods. Visit http://www.cfids.org/cfidslink/2005/pep.asp to learn more about recently developed activities.


Living with CFIDS: Personal Stories
Many CFIDSLink readers have been sharing stories of how CFIDS impacts their lives and the lives of their families. Stories of profound loss, of anger and acceptance, of a struggle without end. In this month's column, you’ll meet Catherine Lilbit Devine who was raised "never to quit and to believe that illness was something you just pushed through. So I didn’t give up. I adjusted my career expectations, and I adjusted my life."

Visit http://www.cfids.org/cfidslink/2005/devine.asp to read Catherine's story, then please consider sharing your own. Send your personal stories to Marcia Harmon at stories@cfids.org.


Tell Us Your Secrets for Success

The CFIDS Chronicle, print companion to the CFIDSLink, will be featuring Tips for Daily Life in an upcoming issue. Who better than to offer tips than our own valued readers? Perhaps there is a special program that has helped you or your family. Or maybe you’ve found a unique way to stretch dollars, time or energy. If you have one or more gems that really help you get along, please share them with the Chronicle’s new editor Pamela Young at editor@cfids.org.


Regional Conferences and Meetings

Visit the Community section of the Association's Web site at http://www.cfids.org/community/conf-meetings-interest.asp for an up-to-date listing of regional conferences, support group information and community resources for patients and their family members. Information is currently available about upcoming conferences to be held in New Jersey, South Carolina, Florida, Minnesota, North Carolina and California.


Bulletin Board Notices

Visit http://www.cfids.org/community/bulletin-board.asp for up-to-date news and happenings within the CFIDS community.